Who We Are
Founded in 2003, The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation and the role that each party plays as a participant in the process. CISCRP’s staff and board of advisors have highly diverse backgrounds - from the clinical research, healthcare and advocacy communities. CISCRP’s funding comes from a wide variety of sources including individual donors, government and research institutions, foundations and corporations.
CISCRP Board of Directors

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Ken Getz, Founder and Board Chair
Ken Getz is a Senior Research Fellow at the Tufts Center for the Study of Drug Development, where he studies R&D management and operating models, investigative site, outsourcing, and study volunteer trends and policies. Ken is also the founder and owner of CenterWatch. A well-known speaker at conferences, symposia, universities and corporations, Ken has published more than 200 articles and chapters in peer-review journals, books, and in the trade press. He is the author of two nationally recognized books for patients and their advocates titled, Informed Consent: A Guide to the Risks and Benefits of Volunteering for Clinical Trials and The Gift of Participation, and the recipient of several awards for innovation and scholarship. Ken has held a number of board appointments in the private and public sectors, including serving on the Institute of Medicine's Clinical Research Roundtable, the DIA Foundation, the Consortium to Examine Clinical Research Ethics, and the Clinical Trials Transformation Initiative.
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Sharon Terry, Board of Director, CISCRP
Sharon Terry is the President & CEO of Genetic Alliance. She is the founding Executive Director of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). She is at the forefront of consumer participation in genetics research, services and policy and serves as a member of many of the major governmental advisory committees on medical research. In 2009, Sharon received the Research!America Distinguished Organization Advocacy Award and she has recently been named an Ashoka Fellow. |
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Diane Simmons, President and CEO
Diane Simmons, CISCRP’s President and CEO, has extensive experience in managing a nonprofit. For over ten years, she ran a $5 million United Way agency where she was responsible for the development and implementation of the agency’s strategic plan and she managed the functions of membership, marketing, programming, and finance. Prior to her involvement in running a nonprofit, she rose through the ranks of Citibank/Citigroup to Vice President of Management Development and Training, then Chief of Staff to the head of Citibank Visa/MasterCard, and then to Vice President of Citigroup Insurance Marketing generating $80 million business income annually. |
Leadership Team
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Jill McNair, National Director, AWARE for All
Jill McNair is the National Director, AWARE for All Clinical Research Education Days at CISCRP. Before joining the CISCRP team Jill spent 10 years at the Drug Information Association where she managed a team dedicated to the development of the educational meetings and webinars. She resides in Pennsylvania with her husband and two children. |

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Emily Ouellette, Senior Project Manager
Emily Ouellette is CISCRP’s Senior Project Manager. She is a graduate of Colby College and the University of Pittsburgh School of Law where she was a member of the Journal of Environmental and Public Health Law. Prior to law school she served several years as a paralegal in Washington, D.C. and was an instructor with World Teach in Ecuador. She is responsible for project management and oversight of regulatory matters affecting clinical trials. |
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Niki Eastley, Webmaster and Project Manager
Niki Eastley is CISCRP's Webmaster and Project Manager for the Search Clinical Trials Search Engine. Prior to joining CISCRP in 2006, Niki spent 5 years at CenterWatch where she managed the Clinical Trial Listing Service and the CenterWatch.com website. Niki graduated from Boston College, receiving a BA in Communications. |
CISCRP Board of Advisors
Diana L. Anderson, Ph.D.
President & CEO, D. Anderson & Company
Mr. Evan Brett
Vice President, Clinical Trials Media
Dr. Marylou Buyse
Chief Medical Director, SWHP, Scott & White Healthcare
Dr. Robert Califf
Vice Chancellor for Clinical Research, Duke University
Director,
Duke Translational Medicine Institute
Joan A. Chambers
Chief Operating Officer, CenterWatch
Dorothy Cirelli
Former Chief, NIH Patient Recruitment and Public Liaison Office
Scott H. Connor
Vice President, Marketing, Acurian, Inc
Dr. William Crowley
Professor of Medicine & Director of Clinical Research, Massachusetts General Hospital
Peter A. DiBiaso
Clinical Development Operations, Vertex Pharmaceuticals
Sarah Ebner, MBA, MPH
President, Investigator Support Services, Inc., and Director of Sales,
Phone Screen
Yolanda Fleming
Project IMPACT, National Medical Association
Dr. Jorge Guerra
Sr VP, Global Clinical Operations, Biogen Idec
Lani Hashimoto
Executive Director, Specialized Site Services, i3 Research
Courtney Gray Haupt
Vice President, Public Affairs and Health Policy, Spectrum
Barbara Kephart
Manager, Patient and Investigator Recruitment and Retention, Roche, Pharma Development – US
Felix A. Khin-Maung-Gyi, Pharm. D.
CEO, Founder, Chesapeake Research Review, Inc.
David Knepper
Executive Director Clinical Research, PharmaNet, Inc.
Dr. Greg Koski
Associate Professor of Anaesthesia, Harvard Medical School & VP, Ethics & Professional Conduct, MGH
James Kremidas
Head of Patient Outreach, Quintiles
Timothy S. LaCroix, MBA
Engagement Partner, Business Development, Premier Research
Mark Lacy
President & CEO, Benchmark Research
Christine Pierre, RN
President & CEO, Rx Trials, Inc.
Kay Ryan
Director of Clinical Research Operations, MGH Clinical Research Program
Bernard Schwetz DVM
Former Director, United States Office of Human Research Protection
Linda Strause Ph.D.
Executive Director, Oncology Clinical Operations, Vical Incorporated
Katherine Waite
President, The Portico Group
Laura Watkins, Ph.D.
Principal, Dovetail Associates
Ms. Myrl Weinberg
President, National Health Council
Nancy Zeleniak
Global Head, Venture Relations
PPD, Inc.
CISCRP 2009-2010 Annual Report