Ken Getz, Founder and Board Chair
Ken Getz is a Senior Research Fellow at the Tufts Center for the Study of Drug Development, where he studies R&D management and operating models, investigative site, outsourcing, and study volunteer trends and policies. Ken is also the founder and owner of CenterWatch. A well-known speaker at conferences, symposia, universities and corporations, Ken has published more than 200 articles and chapters in peer-review journals, books, and in the trade press.  He is the author of two nationally recognized books for patients and their advocates titled, Informed Consent: A Guide to the Risks and Benefits of Volunteering for Clinical Trials and The Gift of Participation, and the recipient of several awards for innovation and scholarship. Ken has held a number of board appointments in the private and public sectors, including serving on the Institute of Medicine's Clinical Research Roundtable, the DIA Foundation, the Consortium to Examine Clinical Research Ethics, and the Clinical Trials Transformation Initiative.

Sharon Terry, Board of Director, CISCRP
Sharon Terry is the President & CEO of Genetic Alliance. She is the founding Executive Director of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). She is at the forefront of consumer participation in genetics research, services and policy and serves as a member of many of the major governmental advisory committees on medical research. In 2009, Sharon received the Research!America Distinguished Organization Advocacy Award and she has recently been named an Ashoka Fellow.

Jim Brinning, Director of AWARE for ALL
Jim Brinning, CISCRP’s  Director of AWARE for All spent ten years at the height of the HIV/AIDS pandemic, developing training programs, workshops, surveys and marketing strategies for the AIDS Action Committee of Massachusetts for both infected and at-risk individuals and communities. In 1999, the Boston City Council passed a resolution in recognition of his pioneering work, especially in communities of color. It was estimated that over 20,000 attended his workshops alone in that period. He was also part of the HIV Vaccines Trials Network (HVTN), a national public-private partnership developed by the National Institute of Allergy and Infectious Diseases (NIAD) to combine the different skills and talents of private industry and academic researchers to work together to move favorable HIV vaccine candidates out of the development pipeline and into human testing. He managed client advisory boards and educational campaigns to raise public awareness about the importance of such research, culminating in a Gubernatorial proclamation declaring HIV Vaccine Awareness Day in Massachusetts. As program director of the Governor’s Task Force on Crimes, he developed statewide community outreach programs to raise public awareness on that issue and targeted programs for students, law enforcement and at-risk communities. In that position, he also worked on the first of its kind anti-bullying best practices guide in Massachusetts and the annual hate crimes report for Massachusetts that gathered and analyzed statistics  from the state’s various law enforcement agencies.

Interns