November 8, 2016

Letter from the Editor, November 2016

The weather is starting to cool and as fall greets us, it is a wonderful time to reflect on the events of the past year and begin to gear up for new and exciting opportunities ahead. I’d like to introduce myself as […]
November 8, 2016

Empowerment Through Participation: A Parkinson’s Patient Shares His Advocacy Story

By Rachel Minnick When Don Simmonds was diagnosed with Parkinson’s Disease at age 73, clinical trials were on the forefront of his mind. Upon his first meeting with his specialist, Dr. Goetz suggested that Don would be a good candidate for a […]
November 8, 2016

Communicating Trial Results: A Growing Need for Industry

By Rachel Minnick Since 2009, CISCRP has been working with pharmaceutical, biotechnology and medical device companies to create and disseminate plain language summaries for clinical trial participants under its Communicating Trial Results program. During the past seven year we have seen tremendous […]
November 8, 2016

Collaborations with CISCRP: This Month’s Highlights

By Rachel Minnick Here at CISCRP we believe that collaboration is essential to generate new ideas, initiatives, and outcomes and we are pleased to join forces with several organizations, in various capacities, to help further our mission of educating patients and the […]
November 8, 2016

CISCRP’s Patient Advisory Board Collaboration with TransCelerate

By Rachel Minnick For several years, CISCRP has been organizing and facilitating Patient Advisory Boards to solicit patient feedback on a wide range of areas including protocol design feasibility; clinical trial medicine kits; new technologies and services supporting the participation process; and […]
November 8, 2016

CISCRP Kicks off Annual Fundraising Appeal for Educational Programs

By Rachel Minnick As 2016 comes to a close, we are kicking off our annual End of Year fundraising appeal here at CISCRP! We know that this is the time of year when important decisions are being made for how to allocate […]
November 8, 2016

A Recap of the “Inspiring Hope” Ideathon

By Rachel Minnick INC Research and CISRP hosted the two day “Inspiring Hope” Ideathon on September 27th and 28th at the modern, funky District Hall venue in Boston’s seaport district. The Ideathon was an innovative, think tank type of event, which aimed […]
July 14, 2016

Letter from the Editor, July 2016

As the weather heats up in Boston, so does momentum around CISCRP’s many programs and initiatives coming later this summer and fall. This newsletter follows the DIA 2016 Annual Meeting where CISCRP staff members and Founder Ken Getz participated and made new […]
July 14, 2016

CISCRP Prepares for a Full AWARE for All Schedule this Fall

By Susannah Buzard This fall 2016, CISCRP has a number of AWARE for All programs planned. On October 20, CISCRP will host an AWARE for All event in Miami Florida at the downtown Hyatt Regency location from 11-2pm. Later in autumn, CISCRP […]
July 14, 2016

BlueCloud by HealthCarePoint Campaign to Provide Funding to Raise Clinical Research Literacy for Students and their Families

By Susannah Buzard On July 1st, the Research Literacy Connections for Tomorrow’s Cures campaign was launched between CISCRP and BlueCloud by HealthCare Point to provide funding in an effort to raise clinical research literacy for students and their families. BlueCloud by HealthCarePoint […]