CISCRP Supports Lilly’s Hero’s Journey Art Project to Honor Clinical Trial Participants

The Center for Information and Study on Clinical Research Participation (CISCRP), an independent non-profit organization dedicated to educating patients and the public about clinical research is excited to announce support of Eli Lilly and Company’s (Lilly) Hero’s Journey Art Project, a series of sculptures created to honor clinical trial participants and raise awareness of clinical research.

Lilly has commissioned artist John Magnan to create The Hero’s Journey. Magnan is a Massachusetts artist who creates unique sculptures addressing health care, social, and environmental issues. For The Hero’s Journey project, Magnan is building a set of crowdsourced sculptures made of 1,000 decorated wooden bricks, submitted by clinical trial participants and community members around the nation.

One of CISCRP’s most important initiatives is the Medical Heroes Campaign, launched to recognize and honor clinical trial volunteers who give the gift of trial participation. CISCRP’s Founder and Board Chair, Ken Getz, comments, “Supporting Lilly’s Hero’s Journey art project is a natural alliance for CISCRP since we have an entire program dedicated to recognizing Medical Heroes – the millions of people who take part in clinical trials each year to help advance public health and medical knowledge. With our support of this project we hope to help raise public awareness of and appreciation for these brave and incredible individuals.”

“Lilly is excited to see the broad research community, particularly patients, honored for their efforts in bringing new medicines to the world,” said Joe Kim, Senior Advisor in Clinical Innovation at Lilly. “Using art to publicly commemorate the clinical trial community is both rare and unexpected. We hope that this art will inspire others to engage with research to improve the well-being of future generations.”

The first sculpture, “Departure” was unveiled on March 10, 2017 at LiveSTRONG Headquarters, in Austin, TX. As completed bricks are returned, additional sculptures will be created and set for unveiling. Follow #herosjourneyart on social media for updates on additional sculpture locations.

Whether you are a trial participant snapping a photo with your completed brick or you simply want to express your thoughts on the clinical trial journey, make sure you use the hashtag #herosjourneyart.

Research Professionals and the Public to Honor Study Volunteers with 5K Run & Walk Event

The Center for Information and Study on Clinical Research Participation (CISCRP), an independent non-profit organization is excited to announce the upcoming Medical Heroes Appreciation 5K Run & Walk in Chicago to celebrate the volunteers who give the gift of participation in clinical research and to raise awareness about the importance of clinical research in advancing public health.

CISCRP will host the Medical Heroes Appreciation 5K Run & Walk with the support of the Drug Information Association (DIA), held in conjunction with the DIA’s Annual Meeting. The event will take place on Monday, June 19, 2017 at Burnham Park from 6:30-8:15 a.m. Participants are encouraged to register early as space is limited. To register, visit http://www.medhero5k-chicago2017.eventbrite.com.

“Medical Heroes are the brave men and women who take part in clinical trials in an effort to help advance public health and the future of medicine,” says CISCRP’s Founder and Board Chair, Ken Getz. “The goal of our 5K event is to raise public awareness and appreciation for these individuals and to celebrate and honor them for giving the gift of participation in clinical research.”

Chicago area running and walking enthusiasts, patients, caregivers, clinical research professionals, as well as CISCRP supporters and DIA members, are invited to participate and attend the event. All proceeds from the 5K will support clinical research education and outreach programs for patients and their families in minority and under-served communities. Also this year, The Greater Gift Initiative is teaming up with CISCRP to offer a vaccine to a child in need, on behalf of every registrant.

This event is being sponsored by Champion Sponsors, IBM Watson Health and EMD Serono and Elite Sponsor, Synchrogenix. Other sponsors and supporters of the event are Amicus Therapeutics, Advanced Clinical, Publicis Healthcare, DIA, Starbucks, The Great American Bagel, and Einstein Bros. Bagels.

Lauren O’Donnell, Global Vice President of Life Sciences for IBM Watson Health, a Champion Sponsor of the event, remarks “Our organization is honored to be sponsoring this important Medical Heroes Appreciation event and look forward to seeing patients, researchers, and local community members come together to celebrate the study volunteers who bring hope and promise to the future of medicine and health care.”

Sponsorship opportunities are still available and CISCRP is also looking to engage with local community partners for outreach and financial support. Contact ellyngetz@ciscrp.org to speak further about opportunities to collaborate and contribute to this meaningful initiative.

Onsite check-in begins at 6 a.m. and the 5K Run & Walk will begin at 6:30 a.m., following a brief Medical Heroes Recognition Ceremony. For more information about the event, to volunteer, register, or become a sponsor, email ellyngetz@ciscrp.org. Questions about event registration should be addressed to Clarissa Budd via phone, 617-725-2750 x321, e-mail medhero5k@ciscrp.org, or call toll free 1-877-MED-HERO x321.

CISCRP Launches Clinical Trial Volunteer Awareness and Recognition Campaign in USA Today

The nonprofit Center for Information and Study on Clinical Research Participation (CISCRP) announces that it is launching a new campaign, The National Clinical Trial Outreach and Awareness Initiative, to reach millions of Americans. Several times each year – beginning with USA Today on May 12th – CISCRP will be producing and distributing educational supplements in major national newspapers designed to inform the public and patients about the clinical research process.

Each supplement will include educational feature articles and messages about the important role that clinical research volunteers play in advancing public health. In this first edition on Clinical Trials, CISCRP has teamed up with several leading organizations including TransCelerate Biopharma Inc., Biogen, Merck, Pfizer Inc., Janssen Pharmaceuticals Inc., Segal Institute for Clinical Research, and Praxis to develop the educational and laudatory materials. The USA Today supplement hit newsstands in a number of major cities including Boston, New York, Phoenix, Washington D.C., Baltimore, and Los Angeles.

Although an estimated 75,000 clinical trials are conducted each year for severe and debilitating disease conditions, the majority of the public and patients report knowing very little about clinical research and where to go to learn more. CISCRP is launching The National Clinical Trial Outreach and Awareness Initiative to raise the visibility of clinical research, to provide general education, and to elevate the level of public and patient preparedness to navigate the clinical research process. The current supplement is expected to reach more than 20 million people through print and digital channels.

“Clinical trials are the life blood of scientific invention, and the generosity of study volunteers is essential as we work together toward medical breakthroughs that can have a lasting impact on people’s health, well-being, and welfare,” said Andy Lee, Senior Vice President of Global Clinical Trial Operations at Merck Research Laboratories. “Merck salutes the patient volunteers who are helping to push the boundaries of science, and helping ensure better health for society today and for generations to come.”

Recognizing those study volunteers who do participate in clinical trials is essential to spreading awareness about the important role that they play in the clinical research process and in improving public health. Murray Abramson, Vice President of Global Clinical Operations at Biogen, comments “Without patients’ contributions and voice, solving the greatest challenges in medicine and conquering disease would not be possible. Patients, thank you!!!”

Content in this USA Today Supplement on Clinical Trials includes an advertisement thanking and honoring individuals who have given the gift of their participation in clinical trials; a feature story about one young women’s experience in clinical trials; and a headline profile about T.J. Sharpe, a melanoma cancer survivor and clinical trial participant.

Dalvir Gill, PhD, CEO of TransCelerate BioPharma, Inc., noted, “Enhancing the patient experience as they move through their clinical research journey is of utmost importance. That includes facilitating their ability to find and enroll in trials, and supporting their understanding of how a clinical trial works. It also means that the broader industry needs to continue to drive the advancement of innovative solutions that will ease patient burden, and identify efficiencies to make recruitment and participation in clinical research easier. It is only in collaboration with patients that we can advance medical innovation and truly improve the health of people around the world.”

The clinical trials supplement is available on newsstands on May 12th. To view the digital supplement, visit CISCRP’s website.

Be sure to check the CISCRP website frequently for more information on upcoming outreach and awareness campaigns and how you can get involved.

ABOUT CISCRP:
The Center for Information and Study on Clinical Research Participation (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit http://www.CISCRP.org for more information or to support CISCRP’s educational initiatives.

AWARE for All: CISCRP’s Clinical Research Education Event Returning to Houston this May

On Friday, May 12 the Houston community is invited to attend AWARE for All to learn about the clinical research process and obtain educational material about the research activity in Houston. The AWARE for All program is a free educational event produced by the Boston-based non-profit Center for Information and Study on Clinical Research Participation (CISCRP). The event serves as a forum for open dialogue between patients, members of the public, and health and research professionals. AWARE for All – Houston will provide valuable information and education about the clinical research process and clinical research participation, as well as food, prizes, and complimentary health screenings. There will be an overview discussion in Spanish about clinical research, as well as Spanish language materials and onsite translators for assistance. And as a bonus, The Greater Gift Initiative will be donating one vaccine to one child in need on behalf of every event attendee.

This is the second AWARE for All event held in the Houston area since 2014. The AWARE for All program focuses on educating and empowering the public to make informed decisions about all healthcare treatment options available, including clinical research participation. Funding for this event is provided by CISCRP’s national AWARE for All sponsors EMD Serono, Inc., a subsidiary of Merck KGaA Darmstadt, Germany and the Lupus Research Alliance, host sponsors MD Anderson and the Windsor Village – Kingdom Builder’s Center, as well as local sponsors Centex Studies, Inc., the Leukemia & Lymphoma Society and Global Outreach Agency Publicis Health Communications Group and Langland.

Lorna Haughton McNeill, Associate Professor, Department of Health Disparities Research and Chair of the Center for Community-Engaged Translational Research at The University of Texas MD Anderson Cancer Center comments, “We are pleased to co-host this exciting health and education fair for our community, patients, and their family members. Our goals are to share with you important information about clinical research and what it can mean for you and your family, as well as present some ongoing research projects that you might want to join!”

Ellyn Getz, Senior Manager of Development and Community Engagement at CISCRP remarks, “We are excited to return to Houston for the upcoming AWARE for All event and are grateful for the support that we have received from all of our community and research sponsors. The goal of our flagship, internationally recognized AWARE for All program is to empower the public with education about clinical trials so that they can make informed decisions when it comes to their own health care options. We’re looking forward to bringing health care providers, clinical research professionals, members of the public, care partners, and patients together once again.”

The event will be held on May 12 from 11 am-2 pm at the Windsor Village Kingdom Builder’s Center and is free and open to the public. Advanced registration is strongly encouraged and available at https://aware-houston17.eventbrite.com or by calling 1-877-MED-HERO (1-877-633-4376). Sponsorship and exhibit opportunities are still available; email ellyngetz@ciscrp.org to learn more.

About CISCRP:
The Center for Information and Study (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit http://www.CISCRP.org for more information or to support CISCRP’s educational initiatives.

Editor’s Note:
Community and research partners include: Baylor College of Medicine, Centex Studies, Inc., EMD Serono, Inc., a subsidiary of Merck KGaA Darmstadt, Germany, Harris Health System, Houston Affiliate of Susan G. Komen for the Cure, Houston Area Urban League, the Leukemia & Lymphoma Society, the Lupus Research Alliance, MD Anderson Cancer Center, Sisters Network, Inc., Texas Southern University, The University of Texas Health Science Center at Houston, and the Windsor Village – Kingdom Builder’s Center

Announcing Clinical Trial Volunteer Cheer to Recognize Study Volunteers

The CCTVC_Logoenter for Information and Study on Clinical Research Participation (CISCRP), an independent non-profit organization dedicated to educating patients and the public about clinical research, is excited to announce the first ever Clinical Trial Volunteer Cheer, a 5K walk and run event, that will be held on Saturday, April 29 at 9:00 AM at Magnuson Park in Seattle, WA. Participants can walk, run, or participate as a cheerleader. Early registration is encouraged as space is limited. To register, visit medhero5k-seattle2017.eventbrite.com.

The Clinical Trial Volunteer Cheer is a chance for the local Seattle community to celebrate and honor study volunteers who give the gift of participation in clinical research, and to raise awareness about the importance of clinical research in advancing public health. Patients, family members, caregivers, supporters, research professionals, running/walking enthusiasts, and members of the local public are encouraged to participate to show support for clinical trial volunteers. All proceeds will support clinical research education and outreach programs for patients and their families in minority and under-served communities.

Ellyn Getz, Senior Manager of Development & Community Engagement at CISCRP, comments, “Our Clinical Trial Volunteer Cheer is a grass-roots movement to show appreciation for study volunteers who give the gift of participation in clinical research. We invite the local community of Seattle to join us for some healthy exercise, free food, and fun in order to show support for clinical trial volunteers and to help us build educational outreach assistance for patients and their families.”

As part of the event, CISCRP will also offer complimentary health screenings, giveaways, free food, educational resources about clinical research, as well as prizes for best super hero costumes, top fundraisers, and most spirited teams. As an added benefit, The Greater Gift Initiative is teaming up with CISCRP to offer a vaccine to a child in need, on behalf of every registrant. Register as an individual or gather friends and family and create a team.

Check-in will begin at 8:00 AM at Picnic Shelter #2, 7400 Sand Point Way NE, Seattle, WA 98115. For questions or additional information, contact medheroevents@ciscrp.org or call toll-free 1.877.MED.HERO (1.877.633.4376).

Lace up your sneakers and join CISCRP in celebrating study volunteers who participate in clinical trials and make new medical discoveries possible. To register for the event, visit medhero5k-seattle2017.eventbrite.com.

Sponsorship opportunities are still available and CISCRP is also looking to engage with local community partners for outreach and financial support. Contact ellyngetz@ciscrp.org to speak further about opportunities to collaborate and contribute to this meaningful initiative.

AWARE for All: CISCRP’s Clinical Research Education Event Coming to Boston in December

The Center for Information and Study on Clinical Research Participation (CISCRP) is holding an AWARE for All: Clinical Research Education and Health Screening event on Thursday, December 1 from 5-8 pm at the Tufts Medical Center in Boston, MA. Register for this free event through https://awareboston2016.eventbrite.com or by calling 1-877-MED-HERO (1-877-633-4376).

On Thursday, December 1, the Greater Boston community will come together at AWARE for All – Boston to learn about the local clinical research environment.  The AWARE for All program is a free educational event produced by the Boston-based non-profit Center for Information and Study on Clinical Research Participation (CISCRP). The event provides valuable information and education about the clinical research process, new medical treatments under development and how to determine whether to participate in a clinical trial. The event also serves as a forum for open dialogue between patients, members of the public, health and research professionals.  And patients and the public will have access to a number of free health screenings.

This upcoming event is the ninth AWARE for All event held in the Boston area since 2003.  Each event typically attracts 300 – 600 attendees.  This year’s AWARE for All – Boston event will focus on oncology clinical trials and will begin with an overview in both English and Cantonese. Health screenings will include Blood Pressure, BMI, cholesterol, and memory and there will be flu vaccines available. Free dinner, prizes, and giveaways will also be provided. Funding for this event is provided by CISCRP’s National AWARE sponsors EMD Serono, Inc., a subsidiary of Merck KGaA Darmstadt, Germany, and the Lupus Research Alliance, as well as Founding Sponsor Sanofi, and local sponsors Dana-Farber / Harvard Cancer Center, the Massachusetts General Hospital Lazarex Cancer Center, the Office of Regulatory Affairs and Research Compliance at Harvard T.H. Chan School of Public Health, and Tufts CTSI.

This year, CISCRP is thrilled to recognize Sanofi as AWARE for All Boston’s Founding Sponsor.  Sanofi has dedicated a great amount of resources and support for the development of the program. Joanne Lager, Head of Oncology Development at Sanofi, comments “We are honored to be the Founding Sponsor of this clinical research education event.  Sanofi is a global healthcare leader focused on patients’ needs, so being part of this program is important for us to directly engage with and support the education of patients and the involvement of the community in research.”

Ken Getz, CISCRP’s Founder and board chair said “We are pleased to be back in Boston, our hometown, for the upcoming AWARE for All event.  And we’re grateful for the support that we have received from all of our community and research sponsors. The Greater Boston area has one of the most active medical research communities in the world.  Our educational event is internationally recognized and we’re very excited to be bringing health care providers, clinical research professionals and patients together once again.”

The event will be held from 5-8 pm at the Wolff Auditorium at Tufts Medical Center and is open to the public. Advanced registration is strongly encouraged and available at https://awareboston2016.eventbrite.com or by calling 1-877-MED-HERO (1-877-633-4376).

ABOUT CISCRP:

The Center for Information and Study (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit www.CISCRP.org for more information or to support CISCRP’s educational initiatives.

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Editor’s Note:

Community and research partners include: ACRP – New England, American Cancer Society, Boston University School of Medicine, Brigham and Women’s Hospital, Clarion Healthcare, Dana Farber Cancer Institute, EMD Serono, Fenway Institute of Fenway Health, Harvard Catalyst, Harvard School of Public Health, Hummingbird IRB, Leukemia & Lymphoma Society, Massachusetts General Hospital, MassResearch, National Association for the Advancement of Colored People (NAACP), Quintiles, ResearchMatch, TargetCancer Foundation, Tufts Medical Center, Walgreens, and many other prominent community and research partners.

 

http://www.prweb.com/releases/2016/11/prweb13845225.htm

AWARE for All: CISCRP’s Clinical Research Education Event Held to Engage Retirement Community in Laguna Woods

 

FOR IMMEDIATE RELEASE

Boston, MA (PRWEB) October 25, 2016

The Center for Information and Study on Clinical Research Participation (CISCRP) is holding an AWARE for All, http://www.awareforall.org, clinical research education and health screening event on Tuesday, November 1 from 10 am-1 pm at the Laguna Woods Village retirement community in Southern California. This program is open to all Laguna Woods Village residents and their guests and will provide free health screenings, food and prizes, and presentations by local physicians and patients.

The Center for Information and Study on Clinical Research Participation (CISCRP) is pleased to announce an upcoming AWARE for All event on Tuesday, November 1 at the Laguna Woods Village retirement community in Southern California. This free program will aim to educate and empower members of the retirement community in making informed decisions about clinical research and various healthcare options.

Laguna Woods Village residents, their guests, and research professionals will come together to learn about clinical research, receive health screenings, and hear from local physician and patient speakers. This program will feature informational exhibits, lunch, giveaways, discussions from patients, medical professionals and researchers about health conditions such as Alzheimer’s, Diabetes, Cancer, and Lupus. Funding for this event is provided by EMD Serono and the Lupus Research Alliance.

The event will be held from 10 am-1 pm and is open to all Laguna Woods Village residents and their guests.

Dr. Joshua D. Grill, Co-Director, UCI Mind and Associate Professor, Department of Psychiatry and Human Behavior remarked “We are thrilled to partner with CISCRP on bringing this important clinical research education program to the Laguna Woods Village residents and their families. Those who attend will find great value in the free health screenings, shared patient stories, and interactions with local physicians and researchers. It’s a wonderful opportunity for residents to learn more about the various opportunities that are available in this community.”

Ken Getz, Founder of CISCRP added, “We are very pleased to bring this educational program to an active and engaged retirement community. AWARE is designed to inform and engage the public as active partners in the clinical research process. And at this time, there is a disproportionately high level of clinical research activity that may be of interest to this community and its health care options.”

CISCRP holds AWARE for All clinical research education events in various cities all over the world, but this is the first time the program will be brought to a concentrated community of nearly 18,000 residents. The hope is that this very important segment of the population, those aged 55+, will benefit from having relevant health screenings, educational presentations, and interactions with research professionals brought directly to their own community.

Residents and guests of Laguna Woods Village can register for this event through http://www.awareforall.org or by calling 1-877-MED-HERO (1-877-633-4376).

ABOUT CISCRP:

The Center for Information and Study (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit www.CISCRP.org for more information or to support CISCRP’s educational initiatives.

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Editor’s Note

Community and research partners include: AIDS Services Foundation – Orange County, Alzheimer’s Association – Orange County Chapter, Arthritis Foundation, EMD Serono, Institute for Clinical & Translational Science, Irvine Clinical Research, Komen, National Kidney Foundation, Laguna Woods Village – Wellness in the Woods Club, Lupus Research Alliance, SDS Clinical Trials, Inc., Shanti Orange County, College of Allied Health Professions at Western University of Health Sciences, UCLA, UCI – School of Medicine, and other prominent community partners.

http://www.prweb.com/releases/2016/10/prweb13791379.htm