Eligibility Criteria for Clinical Trials

Are you, or someone you know, considering joining a clinical trial? We developed this infographic to serve as a resource to better understand eligibility criteria for clinical trials.

This infographic was reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Diversity in Clinical Trials

For Clinical Research Professionals

This video provides an overview of the importance of diversity in clinical trials. For clinical research professionals only.

Made possible by a sponsorship from WCG.

To read about the development process for this video, click here.

Working Towards a More Inclusive Environment: Transgender & Non-Binary Participants in Clinical Research

Trans and non-binary people face significant barriers to participation in clinical trials. To transform lives and collect the best evidence, we need to fully understand and work together to solve these challenges, by creating more diverse and inclusive clinical trials. This talk features two speakers from these communities who will provide insights, both for attendees that are new to this topic and for those who already have started learning. This webinar was organized and hosted by CISCRP for Clario.

Featured Speakers

Jae Bailey
(They/Them/Their(s))

Liam Paschall
(He/Him/His)

Voices Yet to Be Heard: Including People with Disabilities in Clinical Research

By its very nature, clinical research must align with diversity, equity, and inclusion for it to be fair and representative. But the inclusion of people living with visible and invisible disabilities in clinical trials is often not the focus of the DEI discussion. Voices Yet to Be Heard: Including People with Disabilities in Clinical Research is a conversational webinar featuring a powerful panel of experts and advocates. Our panelists share their experiences participating in clinical research, accessibility challenges they have faced, and suggestions for systemic improvements.

Meet the Panelists

Pam Cusick | Moderator
Senior Vice President, Rare Patient Voice
Pam Cusick is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research, coupled with her passion for patient advocacy, dovetail with Rare Patient Voice’s mission and vision. Pam hopes to expand Rare Patient Voice’s panels to include all patients and caregivers worldwide who want to share their opinions and impact their disease category. Pam earned a BA in Psychology from Sweet Briar College, and a MA in Psychology from the New School for Social Research. She is Past-President of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. As Senior Vice President, Pam’s focus is on the continued growth and success of RPV, with an eye on client services, business development, and oversight of patient outreach, panel management, and marketing.

Richie Kahn | Panelist
Co-Founder & Principal at Canary Advisors
Richie is a health policy professional by training, clinical researcher by trade, and patient advocate by necessity. A rare disease patient and clinical trial participant himself, Richie is intensely passionate about better incorporating the patient perspective into the clinical development process. Through his work at Canary Advisors, he assists organizations set on patient-focused drug and device development by serving as an early-stage patient advocacy function; supporting regulatory patient advocacy; crafting patient-facing market access and reimbursement strategies; and providing clinical trial support services.

Sabina Kineen | Panelist
Rare Disease Patient, Caregiver, and Advocate

Sabina Kineen is a rare disease patient, caregiver, and advocate with a deep passion for health equity, mental health, and patient engagement. Diagnosed with Fabry Disease in her teens, Sabina has spent numerous years advocating for the rare disease community. She is a vocal advocate for mental health, recognizing the critical importance of addressing the psychological impact of living with a rare disease. Sabina is also a strong proponent of health equity and strives to ensure that every patient has access to the care, including clinical trials, they need and deserve.

Sabina’s twelve years of experience as a clinical trial participant gives her a unique perspective and she believes in the power of patient engagement. She recognizes that patients are experts in their own experiences and should have a seat at the table in decisions that affect their care and drug development. 

Sabina has spoken at numerous conferences, served on Patient Advisory boards, serves as a Fabry Champion and Community Ambassador, sharing her story as a patient and caregiver and advocating for the needs of the rare disease community. Through her advocacy work, Sabina aims to raise awareness, promote understanding, and create meaningful change for rare disease patients and their families.

Ash Rishi | Panelist
Founder and Chair of the Board of Trustees, Demand Diversity 

Ash Rishi is a health equity advocate and a leader in patient and community engagement and has been working to improve strategies globally while founding and running the creative health engagement agency, COUCH Health.

Building on his personal ambitions, Ash founded Demand Diversity, initially as a campaign for change, to raise awareness around representation of patients in clinical research. The work Demand Diversity has done over the past few years has led to Ash setting up Demand Diversity as a non-profit initiative to educate and raise awareness of clinical research within under-served populations – with particular focus on improving trust.

Ash’s overall ambition is to make research more equitable, so all communities benefit from the advancement from medicine.

Spring 2023

May 2023

Patient Diversity Campaign

Our Patient Diversity Campaign aims to highlight the importance of diversity in clinical studies by building trust and awareness across all populations. We publish a full-page educational advertisement and article in 5 different newspaper publications, print and digital, reaching over 3 million diverse individuals across Black, African American, Hispanic, and Latino communities.

READ FEATURED ARTICLE

Read Merck’s article about the importance of diversity in cancer research and reaching underrepresented communities to improve clinical research.

Thank You to the Supporting Organizations

Share Your Voice

To participate in an upcoming patient diversity campaign, please contact Corinne Scripps | cscripps@ciscrp.org.

Visit our Library of Resources

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Why Diversity in Clinical Research Matters

Autumn 2022

Patient Diversity Campaign

October 2022 campaign

View Content in Digital Newspaper

Value Add Digital News Editions

Our Patient Diversity Campaign aims to highlight the importance of diversity in clinical studies by building trust and awareness across all populations. We publish a full-page educational advertisement and article in 5 different newspaper publications, print and digital, reaching over 3 million diverse individuals across Black, African American, Hispanic, and Latino communities.

Thank You to the Supporting Organizations

Visit our Library of Resources

CISCRP-20th-Anniv-DIGITAL_2022-04-14_Page_01

View From Subject to Partner Publication

Previous Campaigns

How to Find a Clinical Trial

If you or someone you know is considering taking part in a clinical trial, this brochure is for you. It is intended to help you understand how to find clinical trials that are a good fit for you. We developed this brochure together with subject matter experts, patient advocates, and members of the public, to make sure the topics, language, images, and design are appropriate and engaging.

Purchase Single/Quantity Brochures at our Store

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Topics Include:

  • What Clinical Trials are
  • How to Start Looking for Clinical Trials
  • Where to Look for Clinical Trials
  • What to Expect When Contacting Trial Staff

Spanish version of this brochure is coming soon.

2022 December Edition

Clinical Trials Supplement, USA Today

DIVERSITY

Improving Health Outcomes Through Equity and Access

EVERYDAY HEROES

Clinical Trial Participants’ Selfless Gift to Medicine

About the Supplement

The Clinical Trials Supplement features a variety of informative and timely articles and advertisements about clinical research. Published in USA Today, this campaign spreads awareness about the importance of clinical trial participation and celebrates the medical heroes that give the gift of participation.

CISCRP’s Full-Page Advertisement in December 2022

Thank You to the Supporting Organizations

Visit our Library of Resources

CISCRP-20th-Anniv-DIGITAL_2022-04-14_Page_01

View From Subject to Partner Publication

2022 June Edition

Clinical Trials Supplement, USA Today

The Clinical Trials Supplement features a variety of informative and timely articles about clinical research. This supplement covers the recognition of ‘Medical Heroes’ who contribute to public health through their extraordinary gift of clinical trial participation, insights on how Biogen’s community advisory board is helping Biogen promote diversity in clinical research, an article addressing barriers to clinical trial enrollment, and insights on the importance of telehealth for Rare Diseases.

This supplement also features an inspiring spotlight cover story and interview with Donald MacIntosh, an attorney with Alzheimer’s disease sharing his clinical trial journey.

Thank You to the Supporting Organizations

Share Your Voice

To participate in this campaign or an upcoming media campaign, please contact Matt Steele | msteele@ciscrp.org.

Visit our Library of Resources

CISCRP-20th-Anniv-DIGITAL_2022-04-14_Page_01

View From Subject to Partner Publication