Clinical Research for People in Asian Communities

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.

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We developed this brochure together with members of Asian communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of the Asian community through an anonymous survey.

They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Asian participation in clinical research.

This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Topics include:

  • Why are Clinical Trials Important?
  • The Need for Diverse Participants in Clinical Trials
  • Why Asian Communities Have Not Been Represented in Clinical Trials?
  • How Asian Participants are Protected
  • Things to Consider Before Volunteering
  • Different Ways to Get Involved

Clinical Research Participation for LGBTQ+ Communities

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.

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We developed this brochure together with members of the LGBTQ+ community, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of the LGBTQ+ community through an anonymous survey.

They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of LGBTQ+ participation in clinical research.

This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Topics include:

  • Why are Clinical Trials Important?
  • Why LGBTQ+ Volunteers are Needed
  • How LGBTQ+ Participants are Protected
  • Things to Consider Before Volunteering
  • Questions to Ask Before Participating in a Clinical Research Project
  • Learn More About Clinical Research

The Importance of Diversity in Clinical Trials

Educational brochure about the importance of having diverse participants in clinical research studies.

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Topics include:

  • What are clinical trials?
  • Who takes part in clinical trials?
  • Why should clinical trials have diverse participants?
  • What is being done to improve diversity in clinical trials?
  • Testimonials from patient advocates
  • How can you find more information?

About the brochure:

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.

We developed this brochure together with members of Black, Asian, Hispanic and Latino communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of the public with these ethnic and racial background, who were of different genders and socioeconomic backgrounds, through an anonymous survey.

They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of diversity in clinical research participants.

This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Find more resources here:

Building Bridges Between Health Care Providers and Clinical Research

Health Care Professionals (HCPs) have direct access to thousands of patients who they see on a regular basis. Patients often report having a high level of trust in their HCPs and a recent CISCRP study found 64% of the public believes people should learn about clinical research through discussions with their doctor and nurse…

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Clinical Trials for Hispanics and Latinos

Educational brochure about clinical research for Hispanic and Latino communities.

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Topics include:

  • Why are clinical trials important?
  • Why should clinical trials have diverse participants?
  • Why have Hispanics and Latinos not been represented in clinical trials?
  • How trial participants are protected
  • Risks and benefits of participating in clinical trials
  • Other ways to be involved in clinical research

About the brochure:

CISCRP is committed to engaging and informing communities that have not been well represented in clinical trials by providing clear, unbiased, and culturally appropriate educational materials.

We developed this brochure together with members of Hispanic and Latino communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of Hispanic and Latino communities through an anonymous survey.

They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Hispanic and Latino participation in clinical research. This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

How Can You Find More Information?

The following resources provide more information in Spanish and English:

Clinical Research for Black and African American People

Educational brochure about clinical research for Black and African American communities.

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About the brochure:

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.

We developed this brochure together with members of Black and African American communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of Black and African American communities through an anonymous survey.

They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Black and African American participation in clinical research.

This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Topics include:

  • What is a Clinical Research Project?
  • Why Black and African American Volunteers are Needed
  • Clinical Research Then and Now
  • How Black and African American Participants are Protected
  • Things to Consider Before Volunteering
  • What You Need to Know
  • Questions to Ask Before Participating in a Clinical Research Project
  • Learn More About Clinical Research

The following sources were referenced to create this brochure, and may have other useful information about clinical research, diversity, equity and inclusivity.

2020 Drug Trials Snapshots Summary Report | The Tuskegee Legacy Project: Willingness of Minorities to Participate in Biomedical Research | The Facts About COVID-19 Vaccine Clinical Trials Infographic | CISCRP FAQ’s | Tuskegee University USPHS Syphilis Study | The U.S. Public Health Service Tuskegee Study | The Tuskegee Legacy Project | Research Participants’ Bill of Rights | CISCRP Medical Hero Stories – Jameisha | CISCRP Medical Hero Stories – Shauna

Should My Child Participate

Deciding whether to enroll your child in a clinical trial can be complicated. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide parents and guardians of potential participants through that decision-making process.

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Topics include:

  • What are pediatric clinical trials?
  • How your child is protected
  • Potential risks and benefits
  • Questions to ask a healthcare professional
  • Questions to ask your child
  • Deciding if participation is right for your child
  • What should you do next?
  • Where to find more information

About the brochure:

We developed this brochure with feedback from members of the public, as well as experts in child and adolescent health. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure includes information and questions you can ask to help you and your child understand what being in a trial might mean for you. This includes questions to ask your child or dependent, healthcare professionals, friends, family, and even questions to ask of themselves. It also explains the importance of making an informed decision.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Should I Participate

This brochure includes information and questions that potential trial participants can ask to help them understand what being in a trial might mean for them. This includes questions to ask healthcare professionals, friends, family, and even questions to ask of themselves. It also explains the importance of making an informed decision.

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Spanish
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About the Brochure:

Deciding whether to join a clinical trial is a complicated matter that could affect a participant’s life. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide potential participants through that decision-making process.

This brochure was developed with feedback from members of the public, as well as subject matter experts. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.

Topics include:

  • What does it mean to be in a clinical trial?
  • What is an informed decision?
  • Questions to ask yourself
  • Questions to ask a healthcare professional
  • Questions to ask family, friends, and others you trust
  • What should you do next?