Initiative Aims to Bring Clinical Research Education and Resources to Medically Underserved Communities
BOSTON, MA — The Center for Information and Study on Clinical Research Participation (CISCRP), a nonprofit organization dedicated to educating and informing the public about the clinical research process, has received a new award from the Food and Drug Administration’s Office of Minority Health and Health Equity (FDA OMHHE). The OMHHE innovation award will fund a grassroots pilot research project titled “Evaluating Impact of Mobile Community Education Engagement Initiative on Perceptions and Behaviors Related to Clinical Research Among Underserved Populations,” designed to offer and integrate educational programming and resources about clinical research into the heart of select underserved communities nationwide.
“We are excited to collaborate with CISCRP on this important pilot research project that meets communities where they are, so that everyone has an opportunity to learn and become more informed about clinical research,” said RDML Richardae Araojo, FDA Associate Commissioner for Minority Health and OMHHE Director.
Empirical research in peer-reviewed literature indicates that there has been underrepresentation of racial and ethnic minority populations in clinical trials conducted during the past two decades. Research also shows that low levels of awareness, lack of trust, and poor access to clinical trials are among the top causes of these disparities.
The research project hopes to identify practices that address these issues of underrepresentation through a coordinated, grassroots mobile community education and engagement campaign. CISCRP – in partnership with patient communities and health literacy experts – will develop an educational exhibit within a mobile RV, train local community liaisons and educators, and visit health and cultural activities in select urban centers in the U.S. Throughout the initiative, CISCRP will assess and report on the program’s impact and lessons learned.
“Our mission is to educate and engage with the public and patient communities where they live and learn, and to do so in collaboration with key individuals who reflect the communities,” said Ken Getz, CISCRP Founder and Board Chair. “We are very excited about this pilot project and, at its conclusion, hope to expand its scope nationwide.”
CISCRP has 20 years of experience developing and bringing award-winning grassroots clinical research education through the Journey to Better Health | AWARE for All program, and provides accessible, high-quality education and advocacy to the public and to patient communities.
The Center for Information and Study on Clinical Research Participation (CISCRP) is a 501(c)(3) nonprofit organization dedicated to educating and engaging the public and patients as partners in the clinical research process. CISCRP provides free education, resources, and advocacy services to patients and the public. Visit www.ciscrp.org for more information. For additional questions about the mobile community engagement initiative, please contact Joan Chambers, firstname.lastname@example.org, or Lindsey Elliott, email@example.com.
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