The Latest Dose: Debunking the Myths of Clinical Trials; Leveraging the Realities

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Ken Getz, Executive Director and Professor of Tufts Center for the Study of Drug Development (CSDD), and Elisa Cascade, Chief Product Officer of Science 37, join The Latest Dose to debunk the myths of clinical trials. It is not always easy to tell the difference between misinformation and fact. Trusting false stories can lead someone to make decisions that may be harmful or costly. Ken and Elisa offer insights on the realities and complexities encountered in conducting clinical research around the world.

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The Latest Dose: Raising Awareness for Unknown Illnesses

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There are more than seven thousand rare diseases in the world – 95% of which have no known treatment. The term rare diseases is a cruel misnomer – in fact they aren’t that rare, and importantly, the definition of what constitutes a rare disease differs by country. To raise awareness, Rare Disease Day is recognized on the last day of February annually. In this episode, industry leaders Joan Chambers, senior director of marketing and outreach at CISCRP, and Scott Schliebner, executive VP and chief strategy officer at M&B Sciences, discuss the importance of improving access to treatment and medical representation for individuals with rare diseases and their families.

Eye Know—Do You? Podcast with Ken Getz

Bryan and Bradford Manning chat with Ken Getz, a Tufts University School of Medicine professor and founder of CISCRP, a non-profit organization that helps the general public understand the clinical research process, including those living with an IRD. He discusses the benefits and risks of clinical trials, and the value of participation in research.

About Eye Know—Do You? Podcast

Join the Two Blind Brothers, Bradford and Bryan Manning, on a journey to learn more about genetic testing. Diagnosed with Stargardt disease as boys, Bradford and Bryan are known for their advocacy and charitable work in the inherited retinal disease (IRD) community. Eye Know – Do You? is sponsored by Spark® Therapeutics.

To learn more about inherited retinal diseases and the importance of genetic testing visit

Some speakers have been compensated for their time.

Maintaining Clinical Trial Continuity During COVID-19: The Patient Perspective

In this May 2020 podcast, Ken Getz, Founder and Board Chair, CISCRP, moderates a panel from Parexel that explores how clinical trials have changed and adapted since the outbreak of the COVID-19 pandemic. The panel, featuring three members of Parexel’s Patient Advisory Council, along with Parexel’s Chief Medical & Scientific Officer, Dr. Sy Pretorius, discuss how changes may impact clinical trials in the future for patients. Access the podcast here.