CISCRP’s Perceptions and Insights Survey to Collect Public’s Feedback on Clinical Research

By: Leslie Perez

An important part of CISCRP’s mission is to gain a better understanding of public and patient perceptions of clinical research in an effort to improve trial volunteer participation and experience. It is for this reason that CISCRP’s Research Services team has developed a global survey to gather perceptions and insights data about patient experiences. The study has been conducted in 2013 and 2015 and is currently being conducted again in 2017.

To ensure the effectiveness of each survey, CISCRP’s Research Services team receives input and support from various organizations and investigative sites, and has the survey reviewed by an ethical review committee. The survey design also received input from the public, patients, and patient advocacy groups.  The survey consists of a series of questions which inquire about an individual’s clinical trial experience in addition to overall general perspectives on clinical research. Early indications are that the number of responses to the 2017 study will come close to or match the unprecedented response to the 2015 survey, with an even more diversified regional representation.  For example, there is a substantially higher representation of Japanese respondents in 2017 – offering valuable little-known views on clinical research from this particular region.

Annick Anderson, Director of Research Services states, “The latest 2017 Perceptions & Insights study will reveal exciting new insights on various topics – including the perceived value of various patient engagement initiatives and overall receptivity to the integration of clinical research into clinical care.”

Insights from past studies in 2013 and 2015 have provided important feedback for research professionals who may be seeking better ways to educate the public and improve clinical trials for patients. Data from these surveys are summarized in a series of reports that focus on different topics such as public literacy, public perceptions, decision to participate, and participant experiences. The findings are explained through various charts, graphs, as well as key takeaways. The reports are made available for download and viewing on the CISCRP website.  Many research professionals will reference the survey data in their white papers, publications, and training activities.

As has been done in the past, findings from this year’s survey will be made available free of charge on the CISCRP website, however, a donation to CISCRP is always encouraged for downloading the reports.  CISCRP will also present the findings at conferences, meetings, and forums throughout the year.

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