CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.
We developed this brochure together with members of American Indian and Alaskan Native communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of the American Indian and Alaskan Native community through an anonymous survey.
They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of American Indian and Alaskan Native participation in clinical research.
This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.
Topics include:
- Why are Clinical Trials Important?
- The Need for Diverse Participants in Clinical Trials
- Why Have American Indian and Alaskan Natives Not Been Represented in Clinical Trials?
- How American Indian and Alaskan Native Participants are Protected
- Things to Consider Before Volunteering
- Different Ways to Get Involved