There’s a fundamental gap between researchers and the public. The goal of research is to produce information which fills knowledge gaps. But, often the information research produces is written for an audience who is already well versed in the subject. This results in complex data that is inaccessible to much of the public, even if the information is publicly available. Bridging that gap and translating complex information into something the public can understand is essential as we strive to be a more educated society.
Now, if you read that and understand it- keep in mind that it was written like a scientific abstract, that you can at least read at an 11th grade level, and you’re able to read something that scores incredibly low for general ease of reading. To make that paragraph more accessible, we can simply say this: information is not useful if you cannot understand it.
In my work as a Psychometrist, I recognized the desire of my patients to be more informed about their conditions and treatment plans, but also recognized the frustration at the lack of useful information. As a Sociologist, I recognized that despite our best efforts to produce information, it still wasn’t accessible to the public. My goal is to take these experiences, work as a bridge, and produce useful, understandable information. If we bridge the gap, we can create a more informed, more aware population who is equipped to be a more active part of their own medical journey.