Letter from the Editor, November 2017

Dear Readers,

As 2017 begins to wind down, I’m excited to share some updates and information about what the remainder of the year has in store for CISCRP and what we’re looking forward to in early 2018. 

In this edition of our newsletter we are honored to be spotlighting Robyn Ryan in our Medical Hero Spotlight.  Robyn, who suffers from Traumatic Brain Injury (TBI), shares her experience with clinical trials and why she hopes that there will be more clinical trial opportunities for her in the future.

We’re also giving readers a look at how our Patient Advisory Board Panels are organized and conducted.  This is a service that we offer to organizations who wish to solicit feedback and gather valuable insights directly from patients and their support network on a variety of critical clinical study-related areas. Patient Advisory Board Panels are an invaluable approach to engaging study volunteers, enhancing their participation experience, and providing insights for ways to improve study feasibility, recruitment, and retention.

Our events schedule has been a full and exciting one this Fall!  We recently wrapped up AWARE for All Clinical Research Education events in Newark, Chicago, Wilmington and will be bringing the flagship event to  Jacksonville, FL on December 5th. We also co-hosted a Medical Heroes Appreciation 5K Walk/Run with Stormont Vail Health in Topeka, KS on October 21st.  Be sure to check out our upcoming events for 2018.

At the Newark AWARE for All event, we opened the first ever “MT Pharmacy,” a creative concept to help educate the public about the importance of clinical trials.  You can read all about the purpose of the pharmacy, how it was set up, and some of the feedback we got from the local Newark community. You can also view a video of the MT Pharmacy by visiting www.everyonesinvited.org or view the video here on our Youtube page.

In other news, we were honored to be recognized at Sanofi US’ Sanofi in Our Communities, Celebrating Diversity; a reception held on October 24th at their offices in Bridgewater, NJ.  Sanofi was the host sponsor for AWARE for All Newark and spoke about the success of both the AWARE event and the MT Pharmacy. 

And if you haven’t had a chance to take a look yet, CISCRP just released our 2017 Global Perceptions & Insights Study results.  The objective of the study is to establish routine global assessments of public and patient perceptions, motivations, and experiences with clinical research participation and represents the responses and opinions of 12,000+ members of the public and patients around the world.

Lastly, I invite everyone to check out our new Search Clinical Trials page that has been revamped.  This free concierge service helps people find a clinical trial through online search or by phone with a live customer service representative. 

Wishing the entire CISCRP Community a joyful and prosperous Holiday Season.  Thank you for your continued support as we work to build greater awareness and education around clinical research.

Thanks for reading,

Rachel Minnick

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