Educational brochure about clinical research for Hispanic and Latino communities.
English
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Spanish
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Topics include:
- Why are clinical trials important?
- Why should clinical trials have diverse participants?
- Why have Hispanics and Latinos not been represented in clinical trials?
- How trial participants are protected
- Risks and benefits of participating in clinical trials
- Other ways to be involved in clinical research
About the brochure:
CISCRP is committed to engaging and informing communities that have not been well represented in clinical trials by providing clear, unbiased, and culturally appropriate educational materials.
We developed this brochure together with members of Hispanic and Latino communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of Hispanic and Latino communities through an anonymous survey.
They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Hispanic and Latino participation in clinical research. This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research.
This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.
How Can You Find More Information?
The following resources provide more information in Spanish and English:
- For more information on the topics in this brochure, to go: CISCRP landing page
- American Cancer Society
- FDA Encourages More Participation, Diversity in Clinical Trials
- NHCOA Blog
- CISCRP Video
- Harvard Catalyst, Research Participants’ Bill of Rights
- CISCRP Medical Hero stories