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Letter from the Editor, March 2017

Rachel Minnick

Dear Readers,

We are well into the New Year and 2017 is shaping up to be an exciting year for CISCRP, our educational programs, and our patient outreach and engagement initiatives.  I have some updates and information to share with you as we look to the year ahead of us.

This quarter’s newsletter will introduce a new “Supporter Spotlight” piece that we will include in each edition moving forward.  This will be an opportunity for us to feature a new CISCRP supporter and highlight their work and successes within the clinical research education and outreach space.  For our first spotlight piece, we are featuring Jennifer Byrne of PMG Research, who has been a long-time supporter of CISCRP.

As always, we have included our Medical Hero Spotlight piece, and this quarter we have the pleasure of introducing you to T.J. Sharpe, a Stage IV melanoma survivor, who shares his experiences with different clinical trials and how they ultimately saved his life.

We are delighted to highlight one of our growing Medical Hero Recognition initiatives, a program that includes publications in major national newspapers and one that helps to recognize and thank study volunteers for their participation in clinical research.

We have also included an article on CISCRP’s role in an exciting and important new grant project being spear-headed by the Lupus Foundation of America.  We are part of a team who is developing a new model for improving minority awareness and participation in lupus clinical trials.  Stay tuned for future updates on this ground-breaking initiative.

Lastly, we have some incredible ideas and options for how our community members and supporters can get more involved with CISCRP, be it through use of our educational materials or through creative ways to engage with us.  We want to work with you, as partners, in providing greater outreach and education to the clinical research community, patients, and the public.

In upcoming events news, CISCRP is gearing up for two Medical Hero 5K Walk/Run events on April 29th in Seattle WA and June 19th in Chicago, IL.  We are also hosting our first AWARE for All Clinical Research Education day of 2017 on May 12th in Houston, TX.   Be sure to check our Upcoming Events page for new AWARE for All city and date announcements, coming soon!

As we gear up for the year, I want to note that all of our efforts are made possible by you, our generous supporters, donors, and collaborators.  We are thankful for your dedication to helping us raise awareness about clinical research and the importance of clinical trial participation!

I wish you all the best and hope you will keep CISCRP in your thoughts.

Thanks for reading,

Rachel

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