Studies consistently show that most clinical trial participants want to know what the research community learned from their participation, yet most never hear from the sponsor or research site staff at all after a clinical trial has concluded.
CISCRP has developed and tested a program to provide study volunteers with the results of their clinical trial. Working through our editorial panel of medical and health communications experts as well as patient advocates, CISCRP “translates” the technical results of clinical trials into scientifically accurate, non-promotional lay summaries written at a validated 6th-8th grade reading level.
For external review of each summary, CISCRP calls upon medical professionals, patient advocates, and patients. These Editorial Panels are invaluable to the review process of lay summaries.
CISCRP is actively seeking volunteers to serve on editorial panels to review and provide feedback about lay clinical trial summaries. Editorial Panelists highlight areas that may be confusing to study participants, areas that may come across as biased, and areas that seem to be withholding important information.
CISCRP invites you to join our Editorial Panels. Help us deliver easy to understand, yet scientifically accurate, trial results summaries to study participants around the world. We look forward to receiving your information and inviting you to review lay summaries that match your area of expertise or your interests.
Please contact Susannah Buzard for more information and to volunteer for this opportunity.