Rare Disease Clinical Trials: After Participation, Paying It Forward

Hear from clinical trial participants on how they chose to become advocates to share their experiences in different ways in order to help others through the clinical trials journey and “pay it forward”. Part 3 of a 3-part series.

View the companion infographic here.

About the Panelists

Click on the photo to read biography.

Britta Dornan headshot2

Britta Dornan
EveryLife Foundation for Rare Diseases

Ryan Colburn

Ryan Colburn
Patient Advocate
(Pompe disease)

Dr. Kim Stephens.PNG

Dr. Kim Stephens
Project Alive

Marc Yale Headshot

Marc Yale
International Pemphigus & Pemphigoid Foundation 

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