Gain a better understanding of rare disease clinical trials by listening to patient advocates and health care providers. Learn about the process, questions to ask and how to be informed. Moderated by Christian Rubio, Vice President of Strategic Advancement, Global Genes.
Read the article brief based on the webinar here.
View the companion infographic here.
Read our Medical Hero Spotlight Article: Jenn McNary, Three Sons, Three Rare Diseases & Clinical Trials here.
Read our December Clinical Trials Supplement Article: One Family’s Journey Through Chronic Illness & Clinical Trials here.
About the Panelists
Click on image for biography
Moderator
Christian Rubio
VP of Strategic Advancement,
Global Genes
Panelist
Dr. Jahannaz Dastgir DO
Director, Pediatric Neuromuscular Program,
Goryeb Children’s Hospital
Panelist
Melanie Havert
Project Manager,
Rare Patient Voice, LLC
Panelist
Jenn McNary
Founder & Patient Advocate,
One Rare
Presenter
Stephanie Loomer
Project Manager,
CISCRP
