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Patient & Care Partner Advisory Boards

Engaging Patients as Partners

As an independent nonprofit organization, CISCRP is uniquely positioned to assist companies and institutions in organizing and running their patient advisory boards. CISCRP’s extensive relationships with patient advocacy groups, patient communities, and former study volunteers play a key role in ensuring the best board composition.

CISCRP can conduct Patient Advisory Boards in a virtual environment, using teleconferencing software. This flexible model provides the opportunity to have global representation in a convenient and safe manner for participants.

For several years, CISCRP has been organizing and facilitating patient advisory boards to solicit feedback on:

  • Protocol/study design
  • Study synopses
  • Schedules of assessments
  • Informed consent form design
  • Study communications
  • Clinical trial medicine kits
  • Clinical trial technologies and procedures
  • Other study-specific materials (e.g., post-trial communications)

Patient advisory boards brochure

Learn more about CISCRP’s Patient Advisory Boards by viewing our brochure.

Whitepaper: Insights and Best Practices for Planning and Implementing Patient Advisory Boards

Read a whitepaper written by CISCRP’s Annick Anderson and Ken Getz on best practices for Patient Advisory Boards.

Get more information.

Would you like to request a proposal? Or are you a patient who wants to participate in a Patient Advisory Board or Workshop?

Choose your option and fill out the form below.

Research Services Forms

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Drugviu

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Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

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Peer Plus: Mission and Capabilities

Latino Union of Chicago

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Advocate Aurora Health

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  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

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Institute for Population and Precision Health (IPPH)

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Einstein Healthcare Network

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TREND Community

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Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

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Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

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Lung Cancer Initiative of North Carolina

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Lung Cancer Risk Assessment Handout

PRA Health Sciences

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Duke Health

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Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website 

Missy Hansen

Missy Hansen MSN, APRN, CPNP, CPHON, joined ICON in 2019 as a pediatric strategy liaison. She has 25+ years of experience as a pediatric nurse practitioner, including 17+ years in pediatric hematology/oncology at Children’s Minnesota, the largest hematology/oncology service line in the region, providing care for infants through young adults diagnosed with hematologic and/or oncology conditions. Ms. Hansen gained expertise working in inpatient, outpatient, and urgent care type settings. Ms. Hansen has in-depth experience working with the Children’s Oncology Group—the largest consortium with the most open pediatric studies around the world. She also has experience working with other consortia that conduct trials for pediatric to young adult patients.