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Perceptions and Insights Study

2021 Perceptions and Insights Study

Every 2 years, CISCRP conducts a global study on public and patient views of clinical research. These studies have been conducted since 2013 and help to establish a routine global assessment of trends in perceptions and clinical research experiences. Industry stakeholders can use these reports to identify opportunities to better inform and engage all stakeholders and partners in the clinical research enterprise. CISCRP receives input and support from biopharmaceutical companies, contract research organizations, industry service providers, patient advocates/advocacy groups, and investigative sites to execute the study.

General Perceptions
View Report
Engagement Preferences
View Report
Deciding to Participate
View Report
Participation Experience
View Report

Watch the Perceptions and Insights Study webinar highlighting the results.

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Featured Articles

Patient Engagement Initiatives in Clinical Trials: Recent Trends and Implications Read Article
Global Public Attitudes About Clinical Research and Patient Experiences With Clinical Trials Read Article
Differences in Clinical Research Perceptions and Experiences by Age Subgroup Read Article

Interested in hosting a roundtable discussion on CISCRP's Research Results?

Contact us to get started: info@ciscrp.org

Support our Research

Our reports are free-of-charge to the public and patients, but we request that research professionals and sponsors consider donating to our nonprofit organization in support of our ongoing efforts to research and understand study volunteer perceptions, experiences and behaviors.

Special Reports

Past Perceptions and Insights Study Reports

Interested in Requesting a Proposal?

Drugviu

Click on the resources listed below to download the full versions of Drugviu’s materials. 

Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

Click on the resources listed below to download the full versions of these materials. 

Peer Plus: Mission and Capabilities

Latino Union of Chicago

Click on the resources listed below to download the full Latino Union of Chicago Annual Report. 

 

Advocate Aurora Health

Click on the resources listed below to download the full versions of Advocate’s materials. 

  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Institute for Population and Precision Health (IPPH)

Click on the resources listed below to download the full versions of IPPH’s materials. 
 

Einstein Healthcare Network

Click on the resources listed below to learn more about Einsteing Healthcare Network’s resources. 

TREND Community

Click on the resources listed below to download the full versions of the TREND Community’s materials. 

 

Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. 
Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Lung Cancer Initiative of North Carolina

Click on the resources listed below to view the full versions of LCI’s materials. 

Lung Cancer Risk Assessment Handout

PRA Health Sciences

Click on the resources listed below to view the full versions of PRA’s materials. 

Duke Health

Click on the resources listed below to view the full versions of Duke’s materials. 

Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website 

Missy Hansen

Missy Hansen MSN, APRN, CPNP, CPHON, joined ICON in 2019 as a pediatric strategy liaison. She has 25+ years of experience as a pediatric nurse practitioner, including 17+ years in pediatric hematology/oncology at Children’s Minnesota, the largest hematology/oncology service line in the region, providing care for infants through young adults diagnosed with hematologic and/or oncology conditions. Ms. Hansen gained expertise working in inpatient, outpatient, and urgent care type settings. Ms. Hansen has in-depth experience working with the Children’s Oncology Group—the largest consortium with the most open pediatric studies around the world. She also has experience working with other consortia that conduct trials for pediatric to young adult patients.

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