Public and Patient Perceptions & Insights Study

In 2017, the Center for Information and Study on Clinical Research Participation conducted a global study on public and patient perceptions of clinical research – building on the learning from prior studies conducted in 2015 and 2013. The objective of this study is to establish routine global assessments of public and patient perceptions, motivations, and experiences with clinical research participation.

The insights from the 2017 global study found in the 3 reports below help to monitor trends and identify opportunities to better inform and engage the public and patients as stakeholders and partners in the clinical research enterprise.

Each of the 3 downloadable reports below were produced based on an online international survey CISCRP conducted between May and July 2017. The survey instrument was based in part on questions posed in past surveys. CISCRP received input and support from pharmaceutical, biotechnology, and contract research organizations, and from investigative sites. The survey instrument was also reviewed by an ethical review committee. A total of 12,427 respondents completed the survey.

CISCRP plans to present the findings of this important research at conferences, meetings and forums across the country.

Find out more: CISCRP’s Perceptions & Insights Seminar Series ».

We provide copies of these reports free-of-charge to all of CISCRP’s audience, but ask that research professionals Consider Donating to our nonprofit organization in support of our ongoing efforts to research and understand study volunteer perceptions, experiences and behavior.

Downloadable Reports:

The Participation Experience:
In this report, CISCRP explores various aspects of the clinical research participation experience and highlights new opportunities to enhance this experience and achieve higher levels of study volunteer engagement.

The Participation Decision-Making Process:
In this report, CISCRP explores the participation decision-making process and reveals opportunities for stakeholders to support prospective study volunteers as they navigate this journey.

General Perceptions and Knowledge on Clinical Research:
In this report, CISCRP takes an in-depth look at general perceptions and knowledge of clinical research and reveals opportunities for stakeholders to develop targeted educational initiatives to meet the unique needs of various populations, and to positively influence perceptions going forward.