Written by Ellyn Getz
egetz@ciscrp.org
The general public and patient communities have been receiving a lot of information about how government agencies, private companies, and others are responding to COVID-19. However, there has been limited reliable information about why clinical trials are critical in developing new and promising treatments, and why participation in clinical trials is so important. And, most of the general public do not understand why these new treatments may take such a long time to bring to market, even as industry and other agencies try to speed up this process. Meanwhile, advocacy groups and sites are working hard to address general questions and concerns from patients and caregivers about the clinical research process.
To help fill these knowledge gaps, CISCRP — in collaboration with 5 leading pharmaceutical companies — has developed 3 short, objective, and engaging videos that cover the following themes:
- how new therapies are developed
- how clinical trials are changing to meet the current environment
- safeguards in place to protect study participants
- principles of participation that never change
We are grateful to the passionate team of sponsors who have collaborated with us on developing and promoting this new series: Eli Lilly, Janssen, Takeda, Biogen, BMS, and Merck. These videos are widely available across digital and social media, and CISCRP has shared these videos with patient advocacy groups, sponsors, and sites around the country. The videos have also been translated into Spanish and Mandarin. We thank the many subject matter experts who recorded segments: Dr. Christina Brennan (Northwell Health), Sharie Douglas (iResearch Atlanta), Taylor Fipps Bayless (PMG Research/AccellaCare), Dr. Jonathan Jackson (Massachusetts General Hospital), Monica Mahatre (iResearch Atlanta), Dr. Purvi Parikh (Allergy and Asthma Associates of Murray Hill), Dr. Belinda Tan (People Science), and Katherine Trejo (Emerson Clinical Research Institute).
Since kicking off these animated videos in 2020, CISCRP has developed 8 new clips aimed to assist patients and the public in understanding themes related to clinical research participation. We are currently developing 4 more in Q2 of 2021. Our dedicated and talented Health Communication Services and Research Services teams are passionate about developing credible, neutral content to explain diverse and complex topics. We have established a streamlined process to quickly turn around animated and live-action videos.
If you are interested in learning about our video capabilities and opportunities to collaborate, drop us a line at 617-725-2750 x320 or via email at egetz@ciscrp.org.
