The Trifecta lived daily by Rare Disease families is now experienced by the whole world: 1) Isolation, 2) Medical Uncertainty, 3) Disruptions in Home/Work Life. Scott Schliebner of ICON & Cristol Barrett O’Loughlin of Angel Aid Cares discuss how caregivers are navigating the impact of these three forces for the whole family.
You can access the article brief based on the webinar here.
About the Panelists
Moderator
Scott Schliebner
SVP, Scientific Affairs
Therapeutic Expertise Head
Center for Rare Diseases, ICON
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Panelist
Cristol Barrett O’Loughlin
Founder & CEO
Angel Aid Cares
Click on image for biography.