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Trial Registry Listings

We create plain language study listings that are easy for patients to understand

Empower patients and study staff by easing the burden of communication from the beginning of study conduct.

The Problem

Regulatory clinical trial registries are difficult to understand.

Most regulatory clinical trial registries like ClinicalTrials.gov provide listings of clinical trials that are difficult for patients and the public to understand. ClinicalTrials.gov was built for researchers, not patients.1 With more than 400,000 research studies listed in all 50 US states and in over 220 countries, it can be difficult for the public and interested patients to find information about relevant clinical trials .2

20000
Research Studies on ClinicalTrials.gov

CISCRP's Solution

Using your study protocol, we create a plain language study registry posting that meets the specific requirements of ClinicalTrials.gov. Posting includes:

  • Study Title

  • Condition

  • Purpose

  • Inclusion/Exclusion Criteria

  • Simple and visually engaging study information for posting on registry and trial-finder websites

  • Empower patients and study staff by easing the communication burden from the very beginning of study conduct

  • Establish consistency and improve efficiency by utilizing the plain language study title, purpose, condition, and inclusion/exclusion criteria

  1. Zarin et al. 2011. N Engl J Med. 364(9): 852-860.
  2. Antidote, How to Find Clinical Trials Near Me, www.antidote.me, downloaded 16August2021.

Start Your Project

Drugviu

Click on the resources listed below to download the full versions of Drugviu’s materials. 

Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

Click on the resources listed below to download the full versions of these materials. 

Peer Plus: Mission and Capabilities

Latino Union of Chicago

Click on the resources listed below to download the full Latino Union of Chicago Annual Report. 

 

Advocate Aurora Health

Click on the resources listed below to download the full versions of Advocate’s materials. 

  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Institute for Population and Precision Health (IPPH)

Click on the resources listed below to download the full versions of IPPH’s materials. 
 

Einstein Healthcare Network

Click on the resources listed below to learn more about Einsteing Healthcare Network’s resources. 

TREND Community

Click on the resources listed below to download the full versions of the TREND Community’s materials. 

 

Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. 
Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Lung Cancer Initiative of North Carolina

Click on the resources listed below to view the full versions of LCI’s materials. 

Lung Cancer Risk Assessment Handout

PRA Health Sciences

Click on the resources listed below to view the full versions of PRA’s materials. 

Duke Health

Click on the resources listed below to view the full versions of Duke’s materials. 

Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website 

Missy Hansen

Missy Hansen MSN, APRN, CPNP, CPHON, joined ICON in 2019 as a pediatric strategy liaison. She has 25+ years of experience as a pediatric nurse practitioner, including 17+ years in pediatric hematology/oncology at Children’s Minnesota, the largest hematology/oncology service line in the region, providing care for infants through young adults diagnosed with hematologic and/or oncology conditions. Ms. Hansen gained expertise working in inpatient, outpatient, and urgent care type settings. Ms. Hansen has in-depth experience working with the Children’s Oncology Group—the largest consortium with the most open pediatric studies around the world. She also has experience working with other consortia that conduct trials for pediatric to young adult patients.