Educational brochure about clinical research for Black and African American communities.
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About the brochure:
CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities that have not been well represented in clinical trials.
We developed this brochure together with members of Black and African American communities, as well as subject matter experts who have experience working with these communities. This included receiving feedback from 500 members of Black and African American communities through an anonymous survey.
They all helped make sure the topics, language, images, and design are appropriate and engaging. We also received feedback on how effective our brochure was for raising awareness about the importance of Black and African American participation in clinical research.
This process allowed us to confirm that we are addressing the key concerns and barriers that prevent better diversity, equity, and inclusion in clinical research. This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public.
Topics include:
- What is a Clinical Research Project?
- Why Black and African American Volunteers are Needed
- Clinical Research Then and Now
- How Black and African American Participants are Protected
- Things to Consider Before Volunteering
- What You Need to Know
- Questions to Ask Before Participating in a Clinical Research Project
- Learn More About Clinical Research
The following sources were referenced to create this brochure, and may have other useful information about clinical research, diversity, equity and inclusivity.
2020 Drug Trials Snapshots Summary Report | The Tuskegee Legacy Project: Willingness of Minorities to Participate in Biomedical Research | The Facts About COVID-19 Vaccine Clinical Trials Infographic | CISCRP FAQ’s | Tuskegee University USPHS Syphilis Study | The U.S. Public Health Service Tuskegee Study | The Tuskegee Legacy Project | Research Participants’ Bill of Rights | CISCRP Medical Hero Stories – Jameisha | CISCRP Medical Hero Stories – Shauna
