Community Resources

There are a number of resources available to anyone seeking information about clinical research, both general and disease-specific. The organizations listed below may be good places to start.

General

Angel Flight East
angelflighteast.org
215-358-1900

The Association of Clinical Research Professionals (ACRP)
acrpnet.org

CenterWatch
centerwatch.com
617-948-5100
Toll Free: 866-219-3440

Global Genes
globalgenes.org
949-248-RARE (7273)

Ukranian Association for Clinical Research
uacr.org
380505272203

PhRMA Clinical Study Results Database
phrma.org
202-835-3400

WebMD
webmd.com

Government

AIDS Clinical Trials Information Service
aidsinfo.nih.gov
US: 1-800-448-0440
International: 1-301-315-2816

Clinical Trials.gov
clinicaltrials.gov
1-800-411-1222

Food and Drug Administration (FDA)
fda.gov
1-888-463- 6332

Healthfinder
healthfinder.gov

The National Cancer Institute (NCI)
cancer.gov
1-800-422-6237

National Center for Complementary and Integrative Health
nccih.nih.gov
1-888-644-6226

National Institute of Diabetes and Digestive and Kidney Diseases
niddk.nih.gov
1-800-860-8747

National Institutes of Health (NIH)
nih.gov
301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Disease
niams.nih.gov
301-495-4484

National Heart, Lung, and Blood Institute
nhlbi.nih.gov

Disease Specific Organizations

50 Hoops Prostate Cancer and Cancer Awareness
50hoops.org
800-677-8429

Accelerated Cure Project for Multiple Sclerosis
acceleratedcure.org
781-487-0008

Alzheimer’s Association
alz.org
1-800-272-3900

American Association for Cancer Research
aacr.org
215-440-9300

American Cancer Society (ACS)
cancer.org
1-800-227-2345

American College of Rheumatology
rheumatology.org
404-633-3777

American Diabetes Association
diabetes.org
1-800-342-2383

American Heart Association
heart.org
1-800-242-8721

American Lung Association
lung.org
800-586-4872

American Parkinson’s Disease Association
apdaparkinson.org
800-223-2732

American Society of Clinical Oncology
asco.org
571-483-1780

Arthritis Foundation
arthritis.org
404-872-7100 (national office)

Arthritis National Research Foundation
curearthritis.org
800-588-2873

Cancer Research Institute
cancerresearch.org
800-992-2623

Cholangiocarcinoma Foundation
cholangiocarcinoma.org
888-936-6731

Colontown
colontown.org
410-881-3160

CurePSP
curepsp.org
800-457-4777

Diabetes Advocacy Alliance
diabetesadvocacyalliance.org

EveryLife Foundation for Rare Diseases
everylifefoundation.org
202-697-RARE (7273)

The Foundation for Peripheral Neuropathy
foundationforpn.org
877-883-9942

Hepatitis B Foundation
hepb.org
215-489-4920

The Heart Foundation
theheartfoundation.org
818-865-1100

International Diabetes Federation
idf.org
+32-2-538 55 11

John Hopkins Arthritis Center
hopkinsarthritis.org

Lung Cancer Foundation of America
lcfa@lcfamerica.org
323-741-4713

Lungevity Foundation
lungevity.org
312.407.6100

Lupus Foundation of America
lupus.org
1-202-349-1155

Lupus Research Alliance
lupusresearch.org
212-812-9881
Toll Free: 800-867-1743

Merkel Cell Carcinoma Seattle Support Group
merkelcellcarcinomaseattle
425-269-2520 

Mesothelioma.com
mesothelioma.com
1-800-336-0086

Mesothelioma Hub
mesotheliomahub.com
(866) 253-6952

Mesothelioma & Asbestos 
Awareness Center

mesotheliomadiagnosis.com
(866) 367-8341

Mesothelioma Prognosis Network
mesotheliomaprognosis.com
(844) 807-0913

Mesothelioma Group
TreatMesothelioma.org
(866) 500-3162

Michael J. Fox Foundation
michaeljfox.org
1-800-708-7644

National Multiple Sclerosis Society
nationalmssociety.org
1-800-344-4867

Northwest Parkinson’s Foundation
nwpf.org
1-877-980-7500

KidneyCAN
kidneycan.org
267-223-7970

Parkinson’s Foundation
pdf.org
1-800-473-4636

Prevent Blindness
preventblindness.org
1-800-331-2020

Radiant 14
radiant14.com

Say YES to Hope
sayyestohope.org
877-937-7478

Support for College Students with Cancer
affordablecollegesonline.org

World Heart Federation
world-heart-federation.org
1-877-980-7500

ZERO Prostate Cancer
zerocancer.org
(202) 463-9455 

Disease Specific Trial Assistance

Cardio Smart
cardiosmart.org

Joslin Diabetes Center
joslin.org
617-309-2400

Alliance for Lupus
lupusresearch.org
800-867-1743

National Cancer Institute
cancer.gov
1-800-422-6237

Stand Up 2 Cancer
clinicaltrials.su2c.org
1-877-769-4829

Cancer Treatment Centers of America
cancercenter.com

Lupus Trials
lupustrials.org
1-877-958-7425

​Fox Trial Finder
foxtrialfinder.michaeljfox.org

National Multiple Sclerosis Society
nationalmssociety.org
1-800-344-4867

Alzheimers Association
alz.org
1-800-272-3900

AIDS Info
aidsinfo.nih.gov
1-800-448-0440