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Community Resources

There are a number of resources available to anyone seeking information about clinical research, both general and disease-specific. The organizations listed below may be good places to start.

General

Angel Flight East
angelflighteast.org
215-358-1900

The Association of Clinical Research Professionals (ACRP)
acrpnet.org

CenterWatch
centerwatch.com
617-948-5100
Toll Free: 866-219-3440

Global Genes
globalgenes.org
949-248-RARE (7273)

Ukranian Association for Clinical Research
uacr.org
380505272203

PhRMA Clinical Study Results Database
phrma.org
202-835-3400

WebMD
webmd.com

Government

AIDS Clinical Trials Information Service
aidsinfo.nih.gov
US: 1-800-448-0440
International: 1-301-315-2816

Clinical Trials.gov
clinicaltrials.gov
1-800-411-1222

Food and Drug Administration (FDA)
fda.gov
1-888-463- 6332

Healthfinder
healthfinder.gov

The National Cancer Institute (NCI)
cancer.gov
1-800-422-6237

National Center for Complementary and Integrative Health
nccih.nih.gov
1-888-644-6226

National Institute of Diabetes and Digestive and Kidney Diseases
niddk.nih.gov
1-800-860-8747

National Institutes of Health (NIH)
nih.gov
301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Disease
niams.nih.gov
301-495-4484

National Heart, Lung, and Blood Institute
nhlbi.nih.gov

Disease Specific Organizations

50 Hoops Prostate Cancer and Cancer Awareness
50hoops.org
800-677-8429

Accelerated Cure Project for Multiple Sclerosis
acceleratedcure.org
781-487-0008

Alzheimer’s Association
alz.org
1-800-272-3900

American Association for Cancer Research
aacr.org
215-440-9300

American Cancer Society (ACS)
cancer.org
1-800-227-2345

American College of Rheumatology
rheumatology.org
404-633-3777

American Diabetes Association
diabetes.org
1-800-342-2383

American Heart Association
heart.org
1-800-242-8721

American Lung Association
lung.org
800-586-4872

American Parkinson’s Disease Association
apdaparkinson.org
800-223-2732

American Society of Clinical Oncology
asco.org
571-483-1780

Arthritis Foundation
arthritis.org
404-872-7100 (national office)

Arthritis National Research Foundation
curearthritis.org
800-588-2873

Cancer Research Institute
cancerresearch.org
800-992-2623

Cholangiocarcinoma Foundation
cholangiocarcinoma.org
888-936-6731

Colontown
colontown.org
410-881-3160

CurePSP
curepsp.org
800-457-4777

Diabetes Advocacy Alliance
diabetesadvocacyalliance.org

EveryLife Foundation for Rare Diseases
everylifefoundation.org
202-697-RARE (7273)

The Foundation for Peripheral Neuropathy
foundationforpn.org
877-883-9942

Hepatitis B Foundation
hepb.org
215-489-4920

The Heart Foundation
theheartfoundation.org
818-865-1100

International Diabetes Federation
idf.org
+32-2-538 55 11

John Hopkins Arthritis Center
hopkinsarthritis.org

Lung Cancer Foundation of America
lcfa@lcfamerica.org
323-741-4713

Lungevity Foundation
lungevity.org
312.407.6100

Lupus Foundation of America
lupus.org
1-202-349-1155

Lupus Research Alliance
lupusresearch.org
212-812-9881
Toll Free: 800-867-1743

Merkel Cell Carcinoma Seattle Support Group
merkelcellcarcinomaseattle
425-269-2520 

Mesothelioma.com
mesothelioma.com
1-800-336-0086

Mesothelioma Hub
mesotheliomahub.com
(866) 253-6952

Mesothelioma & Asbestos 
Awareness Center

mesotheliomadiagnosis.com
(866) 367-8341

Mesothelioma Prognosis Network
mesotheliomaprognosis.com
(844) 807-0913

Mesothelioma Group
TreatMesothelioma.org
(866) 500-3162

Michael J. Fox Foundation
michaeljfox.org
1-800-708-7644

National Multiple Sclerosis Society
nationalmssociety.org
1-800-344-4867

Northwest Parkinson’s Foundation
nwpf.org
1-877-980-7500

KidneyCAN
kidneycan.org
267-223-7970

Parkinson’s Foundation
pdf.org
1-800-473-4636

Prevent Blindness
preventblindness.org
1-800-331-2020

Say YES to Hope
sayyestohope.org
877-937-7478

Support for College Students with Cancer
affordablecollegesonline.org

World Heart Federation
world-heart-federation.org
1-877-980-7500

ZERO Prostate Cancer
zerocancer.org
(202) 463-9455 

Disease Specific Trial Assistance

Cardio Smart
cardiosmart.org

Joslin Diabetes Center
joslin.org
617-309-2400

Alliance for Lupus
lupusresearch.org
800-867-1743

National Cancer Institute
cancer.gov
1-800-422-6237

Stand Up 2 Cancer
clinicaltrials.su2c.org
1-877-769-4829

Cancer Treatment Centers of America
cancercenter.com

Lupus Trials
lupustrials.org
1-877-958-7425

​Fox Trial Finder
foxtrialfinder.michaeljfox.org

National Multiple Sclerosis Society
nationalmssociety.org
1-800-344-4867

Alzheimers Association
alz.org
1-800-272-3900

AIDS Info
aidsinfo.nih.gov
1-800-448-0440

Drugviu

Click on the resources listed below to download the full versions of Drugviu’s materials. 

Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

Click on the resources listed below to download the full versions of these materials. 

Peer Plus: Mission and Capabilities

Latino Union of Chicago

Click on the resources listed below to download the full Latino Union of Chicago Annual Report. 

 

Advocate Aurora Health

Click on the resources listed below to download the full versions of Advocate’s materials. 

  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Institute for Population and Precision Health (IPPH)

Click on the resources listed below to download the full versions of IPPH’s materials. 
 

Einstein Healthcare Network

Click on the resources listed below to learn more about Einsteing Healthcare Network’s resources. 

TREND Community

Click on the resources listed below to download the full versions of the TREND Community’s materials. 

 

Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. 
Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Lung Cancer Initiative of North Carolina

Click on the resources listed below to view the full versions of LCI’s materials. 

Lung Cancer Risk Assessment Handout

PRA Health Sciences

Click on the resources listed below to view the full versions of PRA’s materials. 

Duke Health

Click on the resources listed below to view the full versions of Duke’s materials. 

Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website