Skip to content

Community Organizations

There are a number of resources available to anyone seeking information about clinical research, both general and disease-specific. The organizations listed below may be good places to start.


Phone: 215-323-9000

Angel Flight East
Phone: 215-358-1900

Phone: 617-948-5100
Toll Free: 866-219-3440

PhRMA Clinical Study Results Database
Phone: 202-835-3400

Ukranian Association for Clinical Research

Phone: 380505272203 


AIDS Clinical Trials Information Service
US: 1-800-448-0440
International: 1-301-315-2816

Phone: 1-800-411-1222

Food and Drug Administration (FDA)
Phone: 1-888-463- 6332

The National Cancer Institute (NCI)
Phone: 1-800-422-6237

National Center for Complementary and Integrative Health
Phone: 1-888-644-6226

National Institute of Diabetes and Digestive and Kidney Diseases
Phone: 1-800-860-8747

National Institutes of Health (NIH)
Phone: 301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Disease
Phone: 301-495-4484

National Heart, Lung, and Blood Institute

Disease Specific Organizations

50 Hoops Prostate Cancer and Cancer Awareness
Phone: 800-677-8429

Accelerated Cure Project for Multiple Sclerosis
Phone: 781-487-0008

Alzheimer’s Association
Phone: 1-800-272-3900

American Association for Cancer Research
Phone: 215-440-9300

American Cancer Society (ACS)
Phone: 1-800-227-2345

American College of Rheumatology
Phone: 404-633-3777

American Diabetes Association
Phone: 1-800-342-2383

American Heart Association
Phone: 1-800-242-8721

American Lung Association
Phone: 1-800-586-4872

American Parkinson’s Disease Association
Phone: 800-223-2732

American Society of Clinical Oncology
Phone: 571-483-1780

Arthritis Foundation
Phone: 404-872-7100 (national office)

Arthritis National Research Foundation
Phone: 800-588-2873

Cancer Research Institute
Phone: 800-992-2623

Cholangiocarcinoma Foundation
Phone: 888-936-6731

Phone: 410-881-3160

Phone: 800-457-4777

Diabetes Advocacy Alliance

The Foundation for Peripheral Neuropathy
Phone: 877-883-9942

Hepatitis B Foundation
Phone: 215-489-4920

The Heart Foundation
Phone: 818-865-1100


International Diabetes Federation
Phone: +32-2-538 55 11

John Hopkins Arthritis Center

Lupus Foundation of America
Phone: 1-202-349-1155

Lupus Research Alliance
Phone: 212-812-9881
Toll Free: 800-867-1743

Merkel Cell Carcinoma Seattle Support Group
Contact: Gregg Schimmel
Phone: 425-269-2520 (c)

Mesothelioma Hub
Phone: (866) 253-6952

Mesothelioma & Asbestos Awareness Center
Phone: (866) 367-8341

Mesothelioma Cancer Alliance
Phone: 1-800-336-0086

Mesothelioma Prognosis Network
Phone: (844) 807-0913

Mesothelioma Group
Phone: (866) 500-3162

Michael J. Fox Foundation
Phone: 1-800-708-7644

National Multiple Sclerosis Society
Phone: 1-800-344-4867


Northwest Parkinson’s Foundation
Phone: 1-877-980-7500

Parkinson’s Foundation
Phone: 1-800-473-4636

Support for College Students with Cancer

World Heart Federation
Phone: 1-877-980-7500

Disease Specific Trial Assistance

Cardio Smart

Joslin Diabetes Center
Phone: 617-309-2400

Alliance for Lupus
Phone: 800-867-1743

National Cancer Institute
Phone: 1-800-422-6237

Stand Up 2 Cancer
Phone: 1-877-769-4829

Cancer Treatment Centers of America

Lupus Trials
Phone: 1-877-958-7425

National Multiple Sclerosis Society
Phone: 1-800-344-4867

Alzheimers Association
Phone: 1-800-272-3900

Phone: 1-800-448-0440