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Community Organizations

There are a number of resources available to anyone seeking information about clinical research, both general and disease-specific. The organizations listed below may be good places to start.

General

Acurian
www.acurian.com
Phone: 215-323-9000

Angel Flight East
angelflighteast.org
Phone: 215-358-1900

CenterWatch
www.centerwatch.com
Phone: 617-948-5100
Toll Free: 866-219-3440

PhRMA Clinical Study Results Database
www.phrma.org
Phone: 202-835-3400

Ukranian Association for Clinical Research
https://uacr.org/

Phone: 380505272203 

Government

AIDS Clinical Trials Information Service
www.aidsinfo.nih.gov
US: 1-800-448-0440
International: 1-301-315-2816

Clinical Trials.gov
www.clinicaltrials.gov
Phone: 1-800-411-1222

Food and Drug Administration (FDA)
www.fda.gov
Phone: 1-888-463- 6332

The National Cancer Institute (NCI)
www.cancer.gov
Phone: 1-800-422-6237

National Center for Complementary and Integrative Health
nccih.nih.gov
Phone: 1-888-644-6226

National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov
Phone: 1-800-860-8747

National Institutes of Health (NIH)
www.nih.gov
Phone: 301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Disease
www.niams.nih.gov
Phone: 301-495-4484

National Heart, Lung, and Blood Institute
www.nhlbi.nih.gov

Disease Specific Organizations

50 Hoops Prostate Cancer and Cancer Awareness
www.50hoops.org
Phone: 800-677-8429

Accelerated Cure Project for Multiple Sclerosis
www.acceleratedcure.org
Phone: 781-487-0008

Alzheimer’s Association
www.alz.org
Phone: 1-800-272-3900

American Association for Cancer Research
http://www.aacr.org
Phone: 215-440-9300

American Cancer Society (ACS)
www.cancer.org
Phone: 1-800-227-2345

American College of Rheumatology
www.rheumatology.org
Phone: 404-633-3777

American Diabetes Association
www.diabetes.org
Phone: 1-800-342-2383

American Heart Association
www.heart.org
Phone: 1-800-242-8721

American Lung Association
www.lung.org
Phone: 1-800-586-4872

American Parkinson’s Disease Association
www.apdaparkinson.org
Phone: 800-223-2732

American Society of Clinical Oncology
http://www.asco.org/
Phone: 571-483-1780

Arthritis Foundation
www.arthritis.org
Phone: 404-872-7100 (national office)

Arthritis National Research Foundation
www.curearthritis.org
Phone: 800-588-2873

Cancer Research Institute
www.cancerresearch.org
Phone: 800-992-2623

Cholangiocarcinoma Foundation
www.cholangiocarcinoma.org
Phone: 888-936-6731

Colontown
colontown.org
Phone: 410-881-3160

CurePSP
www.curepsp.org
Phone: 800-457-4777

Diabetes Advocacy Alliance
diabetesadvocacyalliance.org

The Foundation for Peripheral Neuropathy
www.foundationforpn.org
Phone: 877-883-9942

Hepatitis B Foundation
www.hepb.org
Phone: 215-489-4920

The Heart Foundation
www.theheartfoundation.org
Phone: 818-865-1100

 

International Diabetes Federation
www.idf.org
Phone: +32-2-538 55 11

John Hopkins Arthritis Center
www.hopkinsarthritis.org

Lupus Foundation of America
www.lupus.org
Phone: 1-202-349-1155

Lupus Research Alliance
www.lupusresearch.org
Phone: 212-812-9881
Toll Free: 800-867-1743

Merkel Cell Carcinoma Seattle Support Group
merkelcellcarcinomaseattle
Contact: Gregg Schimmel
Phone: 425-269-2520 (c)
Email: gtschimmel@gmail.com

Mesothelioma Hub
www.mesotheliomahub.com
Phone: (866) 253-6952

Mesothelioma & Asbestos Awareness Center
www.mesotheliomadiagnosis.com
Phone: (866) 367-8341

Mesothelioma Cancer Alliance
www.mesothelioma.com
Phone: 1-800-336-0086

Mesothelioma Prognosis Network
mesotheliomaprognosis.com
Phone: (844) 807-0913

Mesothelioma Group
www.TreatMesothelioma.org
Phone: (866) 500-3162

Michael J. Fox Foundation
www.michaeljfox.org
Phone: 1-800-708-7644

National Multiple Sclerosis Society
www.nationalmssociety.org
Phone: 1-800-344-4867

 

Northwest Parkinson’s Foundation
nwpf.org
Phone: 1-877-980-7500

Parkinson’s Foundation
www.pdf.org
Phone: 1-800-473-4636

Support for College Students with Cancer
affordablecollegesonline.org

World Heart Federation
www.world-heart-federation.org
Phone: 1-877-980-7500

Disease Specific Trial Assistance

Cardio Smart
cardiosmart.org

Joslin Diabetes Center
joslin.org
Phone: 617-309-2400

Alliance for Lupus
lupusresearch.org
Phone: 800-867-1743

National Cancer Institute
cancer.gov
Phone: 1-800-422-6237

Stand Up 2 Cancer
clinicaltrials.su2c.org
Phone: 1-877-769-4829

Cancer Treatment Centers of America
cancercenter.com

Lupus Trials
lupustrials.org
Phone: 1-877-958-7425

National Multiple Sclerosis Society
nationalmssociety.org
Phone: 1-800-344-4867

Alzheimers Association
alz.org
Phone: 1-800-272-3900

AIDS Info
aidsinfo.nih.gov
Phone: 1-800-448-0440

Drugviu

Click on the resources listed below to download the full versions of Drugviu’s materials. 

Pandemic Response Network Flyer: English

Red de Respuesta a una Pandemia: Español

Peer Plus

Click on the resources listed below to download the full versions of these materials. 

Peer Plus: Mission and Capabilities

Latino Union of Chicago

Click on the resources listed below to download the full Latino Union of Chicago Annual Report. 

 

Advocate Aurora Health

Click on the resources listed below to download the full versions of Advocate’s materials. 

  • Dominantly Inherited Alzheimer’s Network Trial Unit 

Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)

Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)

  • Clarity AD Clinical Study Information

Forgetting the Little Things
Concerned About Memory Loss?

   

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Institute for Population and Precision Health (IPPH)

Click on the resources listed below to download the full versions of IPPH’s materials. 
 

Einstein Healthcare Network

Click on the resources listed below to learn more about Einsteing Healthcare Network’s resources. 

TREND Community

Click on the resources listed below to download the full versions of the TREND Community’s materials. 

 

Community Voice Report July 2020: COVID-19 Positive

 

Community Voice Report August 2020: Pericarditis

Fox Chase Cancer Center - Temple Health

Click on the resources listed below to download the full versions of the Fox Chase Cancer Center’s materials. 
Be the Breakthrough: Understanding Clinical Trials

Allergy & Asthma Network

Click on the resources listed below to download the full versions of the Allergy & Asthma Network’s materials. 
 

Lung Cancer Initiative of North Carolina

Click on the resources listed below to view the full versions of LCI’s materials. 

Lung Cancer Risk Assessment Handout

PRA Health Sciences

Click on the resources listed below to view the full versions of PRA’s materials. 

Duke Health

Click on the resources listed below to view the full versions of Duke’s materials. 

Visit Discover Duke Research on Facebook

Download the handout below in English or Spanish

North Carolina Clinical Research

Visit North Carolina Clinical Research’s website