Community Organizations
General
Acurian
www.acurian.com
Phone: 215-323-9000
Angel Flight East
angelflighteast.org
Phone: 215-358-1900
CenterWatch
www.centerwatch.com
Phone: 617-948-5100
Toll Free: 866-219-3440
EveryLife Foundation for Rare Diseases
www.everylifefoundation.org
Phone: 202-697-RARE (7273)
Global Genes
https://globalgenes.org
Phone: 949-248-RARE (7273)
Ukranian Association for Clinical Research
https://uacr.org/
Phone : 380505272203
PhRMA Clinical Study Results Database
www.phrma.org
Phone: 202-835-3400
Government
AIDS Clinical Trials Information Service
www.aidsinfo.nih.gov
US: 1-800-448-0440
International: 1-301-315-2816
Clinical Trials.gov
www.clinicaltrials.gov
Phone: 1-800-411-1222
Food and Drug Administration (FDA)
www.fda.gov
Phone: 1-888-463- 6332
Healthfinder
www.healthfinder.gov
The National Cancer Institute (NCI)
www.cancer.gov
Phone: 1-800-422-6237
National Center for Complementary and Integrative Health
nccih.nih.gov
Phone: 1-888-644-6226
National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov
Phone: 1-800-860-8747
National Institutes of Health (NIH)
www.nih.gov
Phone: 301-496-4000
National Institute of Arthritis and Musculoskeletal and Skin Disease
www.niams.nih.gov
Phone: 301-495-4484
National Heart, Lung, and Blood Institute
www.nhlbi.nih.gov
Disease Specific Organizations
50 Hoops Prostate Cancer and Cancer Awareness
www.50hoops.org
Phone: 800-677-8429
Accelerated Cure Project for Multiple Sclerosis
www.acceleratedcure.org
Phone: 781-487-0008
Alzheimer’s Association
www.alz.org
Phone: 1-800-272-3900
American Association for Cancer Research
http://www.aacr.org
Phone: 215-440-9300
American Cancer Society (ACS)
www.cancer.org
Phone: 1-800-227-2345
American College of Rheumatology
www.rheumatology.org
Phone: 404-633-3777
American Diabetes Association
www.diabetes.org
Phone: 1-800-342-2383
American Lung Association
www.lung.org
Phone: 1-800-586-4872
American Parkinson’s Disease Association
www.apdaparkinson.org
Phone: 800-223-2732
American Society of Clinical Oncology
http://www.asco.org/
Phone: 571-483-1780
Arthritis Foundation
www.arthritis.org
Phone: 404-872-7100 (national office)
Arthritis National Research Foundation
www.curearthritis.org
Phone: 800-588-2873
Cancer Research Institute
www.cancerresearch.org
Phone: 800-992-2623
Cholangiocarcinoma Foundation
www.cholangiocarcinoma.org
Phone: 888-936-6731
Colontown
colontown.org
Phone: 410-881-3160
CurePSP
www.curepsp.org
Phone: 800-457-4777
Diabetes Advocacy Alliance
diabetesadvocacyalliance.org
The Foundation for Peripheral Neuropathy
www.foundationforpn.org
Phone: 877-883-9942
Hepatitis B Foundation
www.hepb.org
Phone: 215-489-4920
The Heart Foundation
www.theheartfoundation.org
Phone: 818-865-1100
International Diabetes Federation
www.idf.org
Phone: +32-2-538 55 11
John Hopkins Arthritis Center
www.hopkinsarthritis.org
Lungevity Foundation
www.lungevity.org
Phone: 312.407.6100
Lupus Foundation of America
www.lupus.org
Phone: 1-202-349-1155
Lupus Research Alliance
www.lupusresearch.org
Phone: 212-812-9881
Toll Free: 800-867-1743
Merkel Cell Carcinoma Seattle Support Group
merkelcellcarcinomaseattle
Contact: Gregg Schimmel
Phone: 425-269-2520 (c)
Email: gtschimmel@gmail.com
Mesothelioma Cancer Alliance
www.mesothelioma.com
Phone: 1-800-336-0086
Mesothelioma Hub
www.mesotheliomahub.com
Phone: (866) 253-6952
Mesothelioma Prognosis Network
mesotheliomaprognosis.com
Phone: (844) 807-0913
Mesothelioma Group
www.TreatMesothelioma.org
Phone: (866) 500-3162
Michael J. Fox Foundation
www.michaeljfox.org
Phone: 1-800-708-7644
National Multiple Sclerosis Society
www.nationalmssociety.org
Phone: 1-800-344-4867
Northwest Parkinson’s Foundation
nwpf.org
Phone: 1-877-980-7500
Parkinson’s Foundation
www.pdf.org
Phone: 1-800-473-4636
Support for College Students with Cancer
affordablecollegesonline.org
World Heart Federation
www.world-heart-federation.org
Phone: 1-877-980-7500
Disease Specific Trial Assistance
Cardio Smart
cardiosmart.org
Joslin Diabetes Center
joslin.org
Phone: 617-309-2400
Alliance for Lupus
lupusresearch.org
Phone: 800-867-1743
National Cancer Institute
cancer.gov
Phone: 1-800-422-6237
Stand Up 2 Cancer
clinicaltrials.su2c.org
Phone: 1-877-769-4829
Cancer Treatment Centers of America
cancercenter.com
Lupus Trials
lupustrials.org
Phone: 1-877-958-7425
Fox Trial Finder
foxtrialfinder.michaeljfox.org
National Multiple Sclerosis Society
nationalmssociety.org
Phone: 1-800-344-4867
Alzheimers Association
alz.org
Phone: 1-800-272-3900
AIDS Info
aidsinfo.nih.gov
Phone: 1-800-448-0440
ACTG
actgnetwork.org
