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Community Organizations

There are a number of resources available to anyone seeking information about clinical research, both general and disease-specific. The organizations listed below may be good places to start.

General

Acurian
www.acurian.com
Phone: 215-323-9000

Angel Flight East
angelflighteast.org
Phone: 215-358-1900

CenterWatch
www.centerwatch.com
Phone: 617-948-5100
Toll Free: 866-219-3440

PhRMA Clinical Study Results Database
www.phrma.org
Phone: 202-835-3400

Ukranian Association for Clinical Research
https://uacr.org/

Phone: 380505272203 

Government

AIDS Clinical Trials Information Service
www.aidsinfo.nih.gov
US: 1-800-448-0440
International: 1-301-315-2816

Clinical Trials.gov
www.clinicaltrials.gov
Phone: 1-800-411-1222

Food and Drug Administration (FDA)
www.fda.gov
Phone: 1-888-463- 6332

The National Cancer Institute (NCI)
www.cancer.gov
Phone: 1-800-422-6237

National Center for Complementary and Integrative Health
nccih.nih.gov
Phone: 1-888-644-6226

National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov
Phone: 1-800-860-8747

National Institutes of Health (NIH)
www.nih.gov
Phone: 301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Disease
www.niams.nih.gov
Phone: 301-495-4484

National Heart, Lung, and Blood Institute
www.nhlbi.nih.gov

Disease Specific Organizations

50 Hoops Prostate Cancer and Cancer Awareness
www.50hoops.org
Phone: 800-677-8429

Accelerated Cure Project for Multiple Sclerosis
www.acceleratedcure.org
Phone: 781-487-0008

Alzheimer’s Association
www.alz.org
Phone: 1-800-272-3900

American Association for Cancer Research
http://www.aacr.org
Phone: 215-440-9300

American Cancer Society (ACS)
www.cancer.org
Phone: 1-800-227-2345

American College of Rheumatology
www.rheumatology.org
Phone: 404-633-3777

American Diabetes Association
www.diabetes.org
Phone: 1-800-342-2383

American Heart Association
www.heart.org
Phone: 1-800-242-8721

American Lung Association
www.lung.org
Phone: 1-800-586-4872

American Parkinson’s Disease Association
www.apdaparkinson.org
Phone: 800-223-2732

American Society of Clinical Oncology
http://www.asco.org/
Phone: 571-483-1780

Arthritis Foundation
www.arthritis.org
Phone: 404-872-7100 (national office)

Arthritis National Research Foundation
www.curearthritis.org
Phone: 800-588-2873

Cancer Research Institute
www.cancerresearch.org
Phone: 800-992-2623

Cholangiocarcinoma Foundation
www.cholangiocarcinoma.org
Phone: 888-936-6731

Colontown
colontown.org
Phone: 410-881-3160

CurePSP
www.curepsp.org
Phone: 800-457-4777

Diabetes Advocacy Alliance
diabetesadvocacyalliance.org

The Foundation for Peripheral Neuropathy
www.foundationforpn.org
Phone: 877-883-9942

Hepatitis B Foundation
www.hepb.org
Phone: 215-489-4920

The Heart Foundation
www.theheartfoundation.org
Phone: 818-865-1100

 

International Diabetes Federation
www.idf.org
Phone: +32-2-538 55 11

John Hopkins Arthritis Center
www.hopkinsarthritis.org

Lupus Foundation of America
www.lupus.org
Phone: 1-202-349-1155

Lupus Research Alliance
www.lupusresearch.org
Phone: 212-812-9881
Toll Free: 800-867-1743

Merkel Cell Carcinoma Seattle Support Group
merkelcellcarcinomaseattle
Contact: Gregg Schimmel
Phone: 425-269-2520 (c)
Email: gtschimmel@gmail.com

Mesothelioma Hub
www.mesotheliomahub.com
Phone: (866) 253-6952

Mesothelioma & Asbestos Awareness Center
www.mesotheliomadiagnosis.com
Phone: (866) 367-8341

Mesothelioma Cancer Alliance
www.mesothelioma.com
Phone: 1-800-336-0086

Mesothelioma Prognosis Network
mesotheliomaprognosis.com
Phone: (844) 807-0913

Mesothelioma Group
www.TreatMesothelioma.org
Phone: (866) 500-3162

Michael J. Fox Foundation
www.michaeljfox.org
Phone: 1-800-708-7644

National Multiple Sclerosis Society
www.nationalmssociety.org
Phone: 1-800-344-4867

 

Northwest Parkinson’s Foundation
nwpf.org
Phone: 1-877-980-7500

Parkinson’s Foundation
www.pdf.org
Phone: 1-800-473-4636

Support for College Students with Cancer
affordablecollegesonline.org

World Heart Federation
www.world-heart-federation.org
Phone: 1-877-980-7500

Disease Specific Trial Assistance

Cardio Smart
cardiosmart.org

Joslin Diabetes Center
joslin.org
Phone: 617-309-2400

Alliance for Lupus
lupusresearch.org
Phone: 800-867-1743

National Cancer Institute
cancer.gov
Phone: 1-800-422-6237

Stand Up 2 Cancer
clinicaltrials.su2c.org
Phone: 1-877-769-4829

Cancer Treatment Centers of America
cancercenter.com

Lupus Trials
lupustrials.org
Phone: 1-877-958-7425

National Multiple Sclerosis Society
nationalmssociety.org
Phone: 1-800-344-4867

Alzheimers Association
alz.org
Phone: 1-800-272-3900

AIDS Info
aidsinfo.nih.gov
Phone: 1-800-448-0440