At CISCRP, we believe “education before participation” is critical to the patient experience in the clinical research process. Providing easy to understand, digestible and usable information in patient-facing documents throughout all stages of the clinical research process is critical to aiding patient navigation.
CISCRP will translate a clinical research document into plain language, following best practices in health literacy, numeracy and in an appealing, accessible design. All documents will be reviewed by an editorial panel of patients to ensure the documents are written in patient-friendly language.
This independent review is conducted remotely by individuals in their own locale.
In addition, CISCRP will ensure all documents comply with the General Data Protection Regulation (GDPR) that went into effect on May 25, 2018.
Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)
Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)
Forgetting the Little Things
Concerned About Memory Loss?
Click on the resources listed below to view the full versions of LCI’s materials.