Infographic showing the key takeaways from our Straight Talk on Clinical Trials webinar.
View companion material: Webinar | Article Brief | Infographic
Infographic showing the key takeaways from our Straight Talk on Clinical Trials webinar.
View companion material: Webinar | Article Brief | Infographic
Sponsored by Informa Pharma Intelligence & Rare Patient Voice
In a friendly and live conversational format, panelists will discuss:
Mike Wenger
Informa Pharma Intelligence
Co-Moderator
Wes Michael
Rare Patient Voice
Co-Moderator
Steve Jones
EU-IPFF
Panelist
Ashley Smock
Panelist
Sarah Nechama Frisch
Panelist
To access more educational content about clinical trials and clinical research participation, click here.
Dominantly Inherited Alzheimer’s Disease Brochure
Expanded Registry Flyer (English)
Enfermedad de Alzheimer de herencia dominante
Expanded Registry Flyer (Spanish)
Forgetting the Little Things
Concerned About Memory Loss?
Click on the resources listed below to view the full versions of LCI’s materials.
Mike Wenger is Global head of Patient Engagement at Informa Pharma Intelligence. As both a patient and software developer, Mike is passionate about patient access to clinical trials. He is spearheading Citeline Connect, the only end-to-end platform for clinical trial education, recruitment and enrollment, enabling sponsors to accelerate study startup and boost engagement. Mike was named one of the 2020 PM360 ELITE 100 in the Patient Advocates category and a 2020 Force for Change Illuminator. He also was a finalist in the Patient Advocate of the Year category in the 2020 Medigy HITMC Awards.
Wes Michael founded Rare Patient Voice in 2013 to give patients and caregivers with rare diseases the opportunity to voice their opinions in research studies. Rare Patient Voice has now conducted thousands of studies and rewarded patients and caregivers with over $8 million for their participation. Many have been recruited in person by Wes and his team at patient events like fund-raising walks and patient conferences, and through a referral program with patient advocacy and support groups. Rare Patient Voice now covers non-rare as well as rare diseases and conditions and has expanded from the United States to Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand.
Before launching Rare Patient Voice, Wes worked for healthcare market research firm Kantar Health. He previously was a brand manager and market research manager at McCormick (the spice company) and General Mills (working on Wheaties, Total and Kix cereals). He has a BA from the University of Pennsylvania (with a year at Edinburgh University) and an MBA from the University of Chicago. Wes was recently inducted into the DTC National Hall of Fame, honoring individuals who have demonstrated extraordinary achievement in the advancement of direct-to-consumer marketing.
Steve Jones, is President of EU-IPFF, the European Idiopathic Pulmonary Fibrosis and Related Disorders Federation and part of the Citeline Connect referral collective. EU-IPFF is dedicated to making clinical trials work better for patients in partnership with pharma and regulators in UK and Europe. Steve also is chair of trustees of the UK patient organization Action for Pulmonary Fibrosis and a council member for the European Lung Foundation. He also sits on the steering committees of four major non-pharma clinical trials funded by the UK’s National Institute of Health Research. Steve himself is a pulmonary fibrosis patient and had a lung transplant five years ago.
Ashley Smock is a woman living with ovarian cancer. She took part in the Rare Patient Voice/Informa survey on patients and clinical trial participation in 2021.
Sarah Nechama Frisch is a woman living with narcolepsy with cataplexy. She took part in the Rare Patient Voice/Informa survey on patients and clinical trial participation in 2021.