News & Media

Medical Hero Story: Jillian McNulty, Cystic Fibrosis Advocate

Born with cystic fibrosis, Jillian McNulty has spent her entire life fighting to stay healthy. It was only during a clinical trial, when she tried a new medicine called Orkambi,

Medical Hero Story: Shauna Whisenton

Shauna Whisenton was once an individual living with sickle cell disease (SCD). Now she’s an advocate for better therapies, a cure, and better under-standing of SCD. Whisenton, now 41, was

Medical Hero Story: Rachel Patties, Congenital Generalized Lipodystrophy Advocate

Oklahoma Mom on a Mission Reflects on Daughter’s Rare Diagnosis Rachel Petties, a mother of five, refuses to let her daughter’s rare genetic disorder define the lives of their family.

Medical Hero Story: Rachel Minnick, Passionate Clinical Trial Volunteer and Advocate

Remembering Rachel Minnick Rachel Minnick dedicated much of her life as a medical hero. We honor and remember her legacy.  Diagnosed with stage 2 breast cancer in 2013, the wife

Medical Hero Spotlight: Melvin Mann & Chronic Myelogenous Leukemia (CML)

Melvin Mann with his wife, Cecelia and his daughter, Dr. Patrice Mann “CML (chronic myelogenous leukemia) is supposed to be a disease that strikes people in their sixties, and I

Clinical Studies Are Building a Brighter Future for People With Deafness

A mother and son share their experiences at the forefront of cochlear implant clinical research. We’ve all seen the viral videos online of children born deaf hearing their parent’s voice

Media Awareness

CISCRP implements media campaigns throughout the year to build clinical trial awareness in patient communities and the general public. To learn more visit our Media Awareness webpage.



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