Video
In CISCRP’s latest Perceptions & Insights Study surveying more than 12,000 patients globally, 81% expressed interest in receiving their individual study data (e.g., individual lab results) after taking part in a clinical trial —further underscoring the need for returned data to be meaningful, understandable, and useful.
This webinar features a case study highlighting how CISCRP and Biogen partnered with patients to co-create an Individual Data Return (IDR) template, incorporating patient perspectives and plain language best practices to ensure the report truly meets participant needs.
About the Event
Hosted by CISCRP, this webinar highlights how CISCRP and Biogen partnered with patients to co-create an Individual Data Return (IDR) template.
Date Recorded
June 24, 2026
Meet the Panel
Jasmine Masullo
Senior Director, Research Services CISCRP
Kim Edwards
Senior Director, Health Communication Services, CISCRP
Sudipta Chakraborty
Head of Health Literacy & Plain Language Center of Excellence, Biogen
Israel Robledo
Patient Advocate
Marianna Foos
Principal Clinical Data Steward, Biogen
