Resources

Should My Child Participate

Deciding whether to enroll your child in a clinical trial can be complicated. CISCRP is dedicated to helping people of all backgrounds and experiences navigate these decisions for themselves and their families. We created this brochure to guide parents and guardians of potential participants through that decision-making process.

Topics include:

  • What are pediatric clinical trials?
  • How your child is protected
  • Potential risks and benefits
  • Questions to ask a healthcare professional
  • Questions to ask your child
  • Deciding if participation is right for your child
  • What should you do next?
  • Where to find more information
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How did we create this brochure?

This brochure was developed with feedback from members of the public, as well as subject matter experts. They all helped make sure the topics, language, images, and design are appropriate and engaging.

This brochure was also reviewed by an Institutional Review Board (IRB), which is also known as an independent ethics committee. The IRB review ensures the brochure follows ethical guidelines for providing information about clinical research to patients and the public. The alternative text and accessibility features in this brochure were added after IRB review.

Explore More Resources

Pediatric Education Series

Noa Greenwood, Canavan Disease Clinical Trial Participant

Advocating for Yourself or Your Child in a Clinical Trial