Our Medical Hero spotlight library amplifies patient voices by sharing different experiences, insights, and information about medical conditions directly from clinical trial participants, care partners of patients, and patient advocates.
Have you been in a clinical trial or served your community as a patient advocate? Share your story with us here.
Alicia Dellario shares her story as an ovarian cancer survivor clinical trial participant and how clinical research saved her life.
Allison shares her experience living with pancreatic cancer and participating in clinical trial.
Amy shares her experience living with scleroderma and participating in clinical research.
Angie shares her experience living with Multiple Sclerosis and her passion for patient advocacy.
Britt shares her experience navigating the healthcare system and living with complex medical diagnoses.
Nicole shares her family's experience navigating her husband Chuck's life-altering ALS diagnosis.
Dee shares her experience as a scleroderma patient advocate and clinical trial participant.
Desiree shares her experience finding a clinical trial after her breast cancer diagnosis.
After a 25-year career as a lawyer, Donald was shocked when he was diagnosed with Alzheimer's disease.
Donna's journey with severe eosinophilic asthma led her to life-saving treatments and clinical trial advocacy.
Ella shares her own experience living with Cystic Fibrosis, clinical research, and her journey to becoming a full-time patient advocate.
Fred shares his battle with Cholangiocarcinoma, a rare form of cancer, and his hope to participate in clinical research.
Gail shares her experience with HIV and how clinical research, patient advocacy, and the support of her community made an impact.
Diagnosed with relapsing-remitting MS at just 21, Jackie turned her personal journey into a mission to support others.
Jameisha shares her story battling cancer as child and how clinical research participation changed her life.
Medical Hero Story: Jillian McNulty, Cystic Fibrosis Advocate
Jonathan participates in clinical trials for his progressive MS, with the hope that a new treatment will save his life.
Jenn shares her experience as a mother to three children who have rare diseases with serious physical impacts.
As a new mother, Juana was diagnosed with cervical cancer and made the decision to join a clinical trial for treatment.
A long-time lupus patient and advocate, Kaamilah is passionate about advocacy and spreading awareness in her community.
Katie shares her story as an ocular melanoma survivor and the role clinical research played in her treatment.
Katie, an appendix cancer clinical trial participant, shares her experience and advice.
After working on the front lines during the pandemic, Katie shares her experience as a both a nurse and patient herself.
After her Graves' Disease diagnosis, Kimberly Dorris pursued patient education and advocacy full time.
Kim shares her experience battling ovarian cancer and the impact of clinical trial participation on her health.
Kyle shares his experience of being diagnosed with Friedreich's Ataxia at age 17 and how cycling has played a part in his treatment and advocacy work.
Larry shares his unique experience as a survivor of glioblastoma and how clinical research developed the treatments he needed
Leah shares her medical journey to being diagnosed with lupus and how clinical research has played a positive role in her treatment.
Medical Hero Story: Lee Giller & BRCA1
When LuAnne’s oldest daughter was diagnosed with gestational diabetes, LuAnne decided it was time to take action by participating in a trial.
Madhura shares her unique perspective as an Indian woman living with IBD- a condition that faces stigma in the South Asian community.
Marc shares his experience living with Pemphigoid and his passion for patient advocacy.
Melanie and Aaron share their journey navigating Hemophilia A for Aaron and their daughter, Eleanii.
After being diagnosed with Cholangiocarcinoma, Melinda shares how clinical trials gave her hope.
Medical Hero Story: Melvin Mann & Chronic Myelogenous Leukemia (CML)
Mike's passion for patient advocacy was sparked after receiving a shocking diagnosis of multiple myeloma.
Nia shares her experience as a passionate advocate and clinical trial participant for Type 1 Diabetes.
The Greenwood family shares their experience navigating their daughter's rare disease diagnosis and the difference clinical research has made for Noa.
When Pat Erickson, 57, was diagnosed with Parkinson’s disease 12 years ago, she refused to let it define her.
Paul shares his experience overcoming GIST cancer, his work as an advocate cycling for the Pan Mass challenge, and his advice for other patients.
Phyllis shares her story as a long-term advocate and and Type 1 Diabetes patient.
Rachel's family and colleagues share the lasting impact she left as a mother, clinical trial participant, and patient advocate.
Rachel Petties, a mother of five, refuses to let her daughter’s rare genetic disorder define the lives of their family.
Richie hopes to bring awareness and education about his rare diagnosis to the research community.
Scott shares his experience getting treatment for PTSD and a TBI and his passion for bringing awareness to these issues in the veteran community.
Medical Hero Story: Sandy Morris, ALS Advocate
Shanelle shares her experience living with lupus and promoting awareness and education in her community.
Shauna shares her experience battling SCD and how advocacy has become a part of her everyday life.
Katie shares her story as an ocular melanoma survivor and the role clinical research played in her treatment.
Shira's shares her healthcare journey with lupus and the importance of advocating for yourself as a patient and others in your community.
Tina’s path to becoming a health and disability advocate began with her own battle against Crohn’s disease.
When melanoma unexpectedly returned after a successful surgery twelve years prior, T.J. Sharpe was both a husband and a father.
Tom shares how his own experience living with cystic fibrosis has helped share a career focused on patient engagement and advocacy.
Tracy shares her experience as a caregiver for her daughter Savannah who lives with LGS, a developmental brain disorder.
Medical Hero Spotlight: Trishna Bharadia, Advocate for MS & Other Chronic Conditions
