Article

It’s A Fact: Sharing Clinical Trial Results With Participants Builds Trust

By CISCRP Staff|May 14, 2026

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By Annick de Bruin, Chief Research and Insights Officer, Research Services and Shalome Sine, MPH, Senior Manager and Quantitative Insights Specialist, CISCRP

Discover why a simple act, sharing clinical trial results, can make a powerful difference. This article highlights new survey insights showing that most participants expect and value updates on study outcomes, yet many never receive them. It explains how this gap affects trust, satisfaction, and engagement in clinical research, and why greater transparency is not just ethical but essential for building stronger relationships between patients and the pharmaceutical industry.

 

Key Takeaways:

  1. 1.

    Participants strongly value receiving trial results

    Survey data shows that the vast majority of clinical trial participants consider receiving study updates and final results an important part of their experience, with many wanting both individual and overall findings.

  2. 2.

    There is a significant communication gap

    Despite clear expectations and growing regulatory emphasis, results are only shared about half the time, highlighting a persistent disconnect between what participants expect and what they actually receive.

  3. 3.

    Transparency directly impacts trust and engagement

    Failing to share results is more than a missed courtesy. It can reduce participant satisfaction and erode trust in sponsors, while consistent communication helps strengthen relationships and long-term engagement in clinical research.