Industry Insights

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Journey to Better Health Mobile Exhibit | 2024 Baltimore

Our mobile exhibit hit the road for a second time in 2024 and had the opportunity to revisit Baltimore, strengthening our presence in this community.

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Input Needed On Using AI To Create Lay Summaries Of Trial Results

The role AI can play in creating lay summaries of clinical trial results.

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Public Discussion on Considerations for Use of AI in Lay Summary Creation

Join in on the growing topic of patient data protection and policies, to inform patients on the standard of patient data collection.

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Mental Health Resources

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Pediatric & Caregiver Resources

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Diversity in Clinical Trials Package

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Finding Treatments Together Series: Mandarin

CISCRP brought several subject matter experts together to develop, design and release a 3-part, animated, live action video series.

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General Clinical Research Overview: Mandarin

Brought to you by industry-leading subject matter experts.

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Basics of Clinical Trial Participation: Mandarin

Brought to you by industry-leading subject matter experts.

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The Clinical Research Team is Similar to a Sports Team: Mandarin

Brought to you by industry-leading subject matter experts.

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Finding Treatments Together Series Spanish Language

CISCRP brought several subject matter experts together to develop, design and release a 3-part, animated, live action video series.

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The Clinical Research Team is Similar to a Sports Team Spanish Language

Brought to you by industry-leading subject matter experts.

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Basics of Clinical Trial Participation Spanish Language

Brought to you by industry-leading subject matter experts.

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General Clinical Research Overview Spanish Language

Brought to you by industry-leading subject matter experts.

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Diversity Video Collection

Our award-winning videos provide information about clinical research and how it can impact you, your family, and your community.

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Diversity Content Package

The Importance of Diversity in Clinical Trials

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Charts and Statistics

The charts and statistics below help you learn more about clinical trials.

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Infographics

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Our Full Collection of Articles

News, information and articles

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Research Services Special Reports

Perceptions & Insights Survey Special Reports from CISCRP

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Finding Treatments Together Series

Brought to you by industry-leading subject matter experts.

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Finding Treatments Together: The Clinical Research Team is similar to a Sports Team

Brought to you by industry-leading subject matter experts.

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Finding Treatments Together: Basics of Clinical Trial Participation

Brought to you by industry-leading subject matter experts.

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Finding Treatments Together

CISCRP has created a vast library of plain language clinical research content that is available to license, co-develop, customize, or sponsor.

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Participant Bill of Rights

What you need to know before participating.

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Should I Participate

This brochure includes information and questions that potential trial participants can ask to help them understand what being in a trial might mean.

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Should My Child Participate

Deciding whether to enroll your child in a clinical trial can be complicated.

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Clinical Research for Black and African American People

Educational brochure about clinical research for Black and African American communities.

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Clinical Trials for Hispanics and Latinos

Educational brochure about clinical research for Hispanic and Latino communities.

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A Guide to Costs and Payments in Clinical Trials

This brochure gives you the basic facts about costs and payments in clinical trials.

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Common Myths About Clinical Trials

This brochure addresses some common myths about clinical trials.

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The Importance of Diversity in Clinical Trials

Educational brochure about the importance of having diverse participants in clinical research studies.

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Clinical Research Participation for LGBTQ+ Communities

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities

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Clinical Research for People in Asian Communities

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials to engage and inform communities.

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What is a Placebo?

If you or someone you know is considering taking part in a clinical trial, this brochure is for you.

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How to Find a Clinical Trial

If you or someone you know is considering taking part in a clinical trial, this brochure is for you.

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Clinical Research for American Indian and Alaskan Native Communities

CISCRP is committed to providing clear, unbiased, and culturally appropriate educational materials

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A Guide to Oncology Clinical Trials

If you or someone you know is considering taking part in an oncology clinical trial, this brochure is for you.

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Webinars

We work with organizations to develop highly informative webinars on a variety of topics for both professional and public audiences.

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Finding Treatments Together: General Clinical Research Overview

Brought to you by industry-leading subject matter experts.

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Building Patient-Centric Trials, Putting the Patient First

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New Patient Engagement Insights from the 2019 CISCRP Perceptions & Insights Study

Discover the results of the 2019 Perceptions & Insights Study where over 12,450 people worldwide provided their opinions on clinical research.

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Democratizing Clinical Research

Industry professionals discuss barriers to clinical trial participation and ways to address them.

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AWARE for All- Northeast Webinar

This webinar shares information about the clinical trial process and how trial work form panelists and professionals in the Northeast region.

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PLSP: Plain Language Summaries of Publication

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AWARE for All- Northwest Webinar

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Understanding DCTs: Decentralized Clinical Trials

Learn what decentralized clinical trials are, how they work, and the importance of diversity in research participation in a 15-minute Flash webinar.

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Improving Access to & Experiences of Transgender & Non-Binary Patients in Clinical Research

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Rare Disease Clinical Trials

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Supporting Caregivers in Clinical Research: Navigating the Pandemic

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Findings from the CISCRP 2021 Perceptions & Insights Study

Learn about 2021 trends in clinical research awareness and perceptions, including shifts from past studies and patient engagement preferences.

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AWARE for All- Atlanta Webinars

Watch the AWARE for All – Atlanta Webinar Series to learn about the clinical trial process and how trial work.

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Straight Talk on Clinical Trials: Patient Perspectives on Clinical Trial Participation

Panelists discuss insights from a survey of patients on their perspectives of clinical trials and ways that sponsors can refine the process.

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Voices From Within: Humanizing Clinical Research Data: Episode 1 – Patient Data Collection 101

In this webinar, panelists discuss the variety of ways in which patient data can be collected in clinical research.

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Voices from Within: Humanizing Clinical Research Data: Episode 3- Conversations on Clinical Trials

Join Curebase's discussion speaking with a clinical trial participant and their experience in CISCRP's webinar.

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Voices from Within: Humanizing Clinical Research Data: Episode 2- Conversations on DCTs: Data Privacy

Join in on the growing topic of patient data protection and policies, to inform patients on the standard of patient data collection.

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The Clinical Trial Challenge: Boosting Clinical Trial Appeal in Patient Communities – Part 2

Panelists discuss the results of a survey exploring factors that could make participation of interest to patients and family caregivers.

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The Clinical Trial Challenge: Boosting Clinical Trial Appeal in Patient Communities – Part 1

Pam Cusick and patient advocate Grace Charrier discuss a RPV survey exploring factors that could increase clinical trial participation.

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Voices Yet to Be Heard: Including People with Disabilities in Clinical Research

Panelists share their experiences participating in clinical research, accessibility challenges, and suggestions for improvements.

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Working Towards a More Inclusive Environment: Transgender & Non-Binary Participants in Clinical Research

Learn insights on significant barriers that trans and non-binary participants face and how to create more diverse and inclusive clinical trials.

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Insights on Developing an Impactful DEI Video

Hear from our panelists who share insights gained while developing CISCRP’s video, The Importance of Diversity in Clinical Trials.

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Webinar on the 2023 Perceptions & Insights Study

Discover the results from our latest 2023 study, with over 12K responses from around the world!

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Findings from a Long-Term Patient Engagement Model

Clinical Researcher: The Authority in Ethical, Responsible Clinical Research

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Meeting UK IRB/EC Expectations for Patient Review of Research Participant Information

Review key elements of these expectations and practical considerations for meeting them.

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Videos

Our award-winning videos provide information about clinical research and how it can impact you, your family, and your community.

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CISCRP Partners with SubjectWell on Survey

CISCRP partnered with SubjectWell to review how race and gender impact clinical trial participation, during the COVID-19 pandemic.

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Journey to Better Health Mobile Exhibit | 2023 Events

Journey to Better Health is a mobile exhibit that showcases clinical research information to local communities

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Latest CISCRP Patient Survey Reveals Diversity Gaps, Yields 5 Tips For Improvement

More effort is needed to understand the views of underserved groups, such as ethnic and racial minorities, toward clinical research

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Latest CISCRP Patient Survey Reveals Diversity Gaps, Yields 5 Tips For Improvement

More effort is needed to understand the views of underserved groups

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Plain Language Summary Publication of Key Results from Bayer’s Phase 3 ARAMIS Trial Published in Future Oncology

CISCRP and Oxford PharmaGenesis worked with Bayer to write a PLSP of the 2020 New England Journal of Medicine article on the ARAMIS trial.

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Round-Up: Highlighting Recent Health Literacy Educational Materials

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A “Day in the Life” of a Medical Writer at CISCRP

It is Monday morning at the CISCRP office, and I open my computer a few minutes

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Community Trust: The Foundation for Fostering Diversity in Clinical Trials

Racial and ethnic minority populations have historically been underrepresented in clinical trials.

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Plain Language Protocol Synopsis 101

Should Sponsors Add a Plain Language Protocol Synopsis to Future Clinical Trial Applications?

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Community Trust: The Foundation for Fostering Diversity in Clinical Trials

Featured Article in our October 2023 Patient Diversity Campaign

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CISCRP’s Finding Treatments Together Brochure for LGBTQ+ Communities

Our Approach to Codeveloping an Educational Resource for the LGBTQ+ Community

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The Importance of Transgender and Non-Binary Inclusion in Clinical Research

At CISCRP, we value the importance of engaging and informing the groups that are underrepresented in clinical trials.

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The Importance of Transgender and Non-Binary Inclusion in Clinical Research

Recapping the webinar in collaboration with Clario

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Best Practices in Design for Clinical Trial Communications: The Mysterious Art of Typography

CISCRP produces a wide range of patient-friendly materials, such as informed consent forms, brochures, and trial summaries.

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Why Diversity in Clinical Trials Matters – May 2023 Patient Diversity Campaign

Article from our 2023 May Patient Diversity Campaign

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Why Diversity in Clinical Trials Matters – May 2023 Patient Diversity Campaign

Clinical trials are a critical part of the research process for new medicines and vaccines

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The Importance of Patient Engagement and its Role in Clinical Trials

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Behind the Scenes of Health Literacy at the Movies

Learn about the infographic that contains an exercise to help readers brush up on their health literacy knowledge.

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How CISCRP Made Tools for Informed Decision Making

How CISCRP communicates clinical research information to the public

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Improving Accessibility in Clinical Trials

How to improve accessibility in clinical research

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The Importance of Diversity in Clinical Trials

To develop therapies and treatments for everyone, it is important that clinical trial participants come from diverse backgrounds and identities.

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Voices from Within: Conversations on DCTs & Data Privacy

In Episode Two of Voices from Within: Humanizing Clinical Research Data, Curebase shares a comprehensive overview of how patient data is collected.

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Clinical Trial Participants’ Selfless Gift to Medicine

"The Gift of Participation" by CISCRP Founder Ken Getz

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Improving Health Outcomes Through Equity and Access

Biogen discusses their efforts to improve health outcomes through equity and access.

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The Couple That’s Empowering Communities of Color to Participate in Parkinson’s Disease Clinical Trials

Discover the Parkinson’s disease diagnosis that spurred an empowering journey Denise is still on today.

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Why Participation in Clinical Trials Is a Must for Hispanics

Clinical trials need ethnically diverse participants so scientists can develop a greater understanding of how diseases impact different people.

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Press Release: CISCRP Receives Innovation Award from FDA’s Office of Minority Health and Health Equity for Research Project on Pilot Mobile Community Engagement Initiative

Initiative Aims to Bring Clinical Research Education and Resources to Medically Underserved Communities

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DEI Series — Educating Clinical Research Practitioners Through Video

CISCRP partnered with WCG to create a video for researchers and study staff that emphasizes the importance of diversity in clinical trials.

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Improving LGBTQ+ Inclusivity in Ovarian Cancer Care

From an ovarian cancer awareness perspective, there are specific messages for the LGBTQ+ community that need to be communicated.

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Put Your Customers in Focus With Patient Experience Mapping

What can healthcare organizations do to maintain resilience while ensuring their products make it to those who need them most?

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Broadening the Lens of Diversity for More Inclusion in Clinical Research

Ensuring diversity, equity and inclusion means more study participants, thorough science, and predictable outcomes for all potential patients.

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New Data Reveals Decentralized Clinical Trials Yield Better Clinical Trial ROI

CISCRP Founder Ken Getz discusses decentralized clinical trials (DCTs) and how their value can be measured

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Broadening the Lens of Diversity for More Inclusion in Clinical Research

For many, clinical trials offer free or low-cost access to testing, care, and cutting-edge treatments that are simply not accessible or available.

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Patient Data Collection 101: Curebase FLASH Webinar Overview

There are a variety of ways in which patient data can be collected in clinical research.

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Clinical Trial Care and Compensation

From "The Gift of Participation" by Ken Getz, Founder & Board Chair, CISCRP

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Addressing Barriers to Clinical Trial Enrollment

Addressing barriers to clinical trial enrollment

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Improving Representation in Breast Cancer Clinical Trials & Developing Better Medicines for All

Article from our 2021 May Patient Diversity Campaign

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Recognizing the Gift of Participation

An excerpt from "The Gift of Participation" by Ken Getz, Founder & Board Chair, CISCRP

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Press Release: Center for Information and Study on Clinical Research Participation Receives National Award from Health Industry Leaders

Healthcare Leadership Council Honors CISCRP for Promoting Engagement and Partnership Between Clinical Research Professionals, Patients, and the Public

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Press Release: From Subject to Partner Publication

CISCRP Launches New Publication Marking the 20th Anniversary of TIME Magazine’s Clinical Research Issue

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The Patient Journey in Clinical Research: Insights & Observations to Scale Engagement

Webinar panelists discuss Rare Patient Voice and Informa Pharma Intelligence's survey results about patient perspectives in clinical research

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No “Kidding”: Using Health Literacy to Communicate Clearly About Pediatric Trials

Using Health Literacy to Communicate Clearly About Pediatric Trials

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Meeting the EU Regulation: Plain Language Summaries & Protocol Synopses

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Jeh Jeh Pruitt, A New Advocate for Clinical Trials: CISCRP’s AWARE for All Program Featured by CSL Behring

Jeh Jeh Pruitt at CISCRP's Journey to Better Health - AWARE for All event in Birmingham, Alabama

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Are Scientists On the Verge of an Alzheimer’s Cure?

Scientists are working towards a cure for Alzheimer's, with the help of clinical trial participants

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Videos in Health Literacy

Addressing the effectiveness of videos in clinical research education

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How African American Men Can Beat the Odds Against Prostate Cancer

What African American men can do to fight prostate cancer

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Health Literacy: Making Content Clear, Engaging, and Appropriate for Patients and the Public

What is healthy literacy and what is CISCRP's Health Literacy team doing?

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CISCRP’s Newly Launched Educational Brochure Initiative

Educational materials from CISCRP's Health Communication Services team

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Key Insights Into Clinical Research Perceptions Among Parents and Children

Findings from CISCRP's online survey about clinical research perceptions among parents and children

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The Priceless Gift of Clinical Trial Participation

Ken Getz, Founder of CISCRP, discusses the importance of clinical research participation

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Expanding Clinical Trial Access for Women Living With HIV

Merck is working with community outreach groups and women living with HIV to understand the burden of the disease and what solutions might help

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Rare Disease Clinical Trials: How to Prepare for When the Clinical Trial Ends

Questions to ask the clinical research study staff before the trial ends

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Participating in a Clinical Trial: Building A Support Network

From “The Gift of Participation” by Ken Getz, Founder & Board Chair, CISCRP

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An Inside Look at Advocating for Yourself or Your Child in a Clinical Trial

How to advocate for yourself or your child in a clinical trial, topic featured in a CISCRP Flash webinar

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Adolescents in Clinical Trials & the RACE for Children Act

Learn about the future of pediatric oncology development, treatment options, and adolescents treatment in light of the RACE for Children Act.

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The Importance of Telehealth for Rare Diseases

Healthcare must reflect all of the opportunities of telehealth, but especially so for those suffering from rare diseases.

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What Does a Caregiver Need?

Dealing with significant health challenges requires expert medical care and the support of committed caregivers.

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Boosting Clinical Trial Appeal in Patient Communities Part 2: Rare Patient Voice FLASH Webinar Overview

Ultimately, no one wants to feel alone during their clinical trial experience.

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Clinical Trial Participants Are Changing Lives

Article from 2020 Clinical Trials Supplement, USA Today

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Rare Disease Clinical Trials: Being Informed about Clinical Research

CISCRP hosted a 3-part webinar series titled “Navigating Rare Disease and Clinical Research: Every Patient Matters”.

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Results From The 2021 CISCRP Perceptions & Insights Study Coming Soon

Preview of findings from CISCRP's 2021 global Perceptions & Insights Study

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Clinical Trials: Every Person Can Play A Powerful Role

Marie-Pierre Hellio La Graverand, M.D., Ph.D, Pfizer, gives her three takeways she’d want people to have about clinical trials

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Rare Disease Clinical Trials Series

Join in on the growing topic of patient data protection and policies, to inform patients on the standard of patient data collection.

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PLSP: The Results Of The DESTINY-Breast Cancer01 Clinical Trial Published In Future Oncology

CISCRP's plain language summary publication from the results of the DESTINY-Breast01 clinical trial

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Why Clinical Trial Diversity Is Key To Increasing Access To Routine Care And Innovative Treatment Options

Article by Luther T. Clark, MD, Deputy Chief Patient Officer, Merck

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Women in Clinical Trials

From “The Gift of Participation” by Ken Getz, Founder & Board Chair, CISCRP

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Why Clinical Trials Are Conducted

An excerpt from CISCRP Founder Ken Getz' "The Gift of Participation"

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CISCRP & Partners’ PLSP on Breast Cancer Study Published in Future Oncology

CISCRP's plain language summary publication (PLSP) of the results of the DESTINY-Breast01 clinical study

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AWARE for All- Midwest Webinars

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Out of the Dark: A Journey Through Postpartum Depression, Part 1

CISCRP Webinar | Out of the Dark: A Journey Through Postpartum Depression, Part 1

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Out of the Dark: A Journey Through Postpartum Depression, Part 2

CISCRP Webinar | Out of the Dark: A Journey Through Postpartum Depression

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Pros & Cons of DCTs & Virtual Clinical Trials

From "The Gift of Participation" by Ken Getz, Founder & Board Chair, CISCRP

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Clinical Studies Are Building a Brighter Future for People With Deafness

A mother and son share their experiences at the forefront of cochlear implant clinical research.

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The Importance of Clinical Research in Underserved Communities

The importance of clinical research is widely recognized, and while many decide to participate in clinical trials, there is a lack of representation.

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Recognizing Research Professionals Who Participated in COVID-19 Trials

This video recognizes research professionals in the clinical research industry who participated in COVID-19 trials.

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CISCRP Provides Plain Language Clinical Trial Communication Services to Support Operation Warp Speed Vaccine Sponsors

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2020 Pediatric Perceptions & Insights Study Yields Important Insights on How to Enhance Pediatric Clinical Trial Participation

Survey Conducted by CISCRP about the perceptions of pediatric trials

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Parents & Children Share Perceptions & Experiences with Clinical Research: Survey

Results from CISCRP's online survey about parents' and their children's perceptions of pediatric trials

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CISCRP Launches Education Video Campaign on Clinical Trial Participation During the Pandemic

CISCRP's educational video about clinical research

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CISCRP Licenses Brochures to Ukrainian Association for Clinical Research (UACR)

CISCRP licensed brochures for translation into Ukrainian by UACR for their members and general public to learn more about clinical research

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CISCRP Explores the Impact of COVID-19 on Clinical Research

CISCRP survey assesses the impact of the pandemic on clinical research perceptions and experiences

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CISCRP Announces 2nd Annual Virtual Fitness Challenge to Recognize Medical Heroes

Encouraging the clinical research community to come together across the globe to honor healthcare professionals, researchers, and study volunteers

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Building A Clinical Trials Website that Engages Patients & the Public

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Journey to Better Health Mobile Exhibit 2018

Journey to Better Health mobile exhibit is our traveling educational exhibit with the goal to raise awareness about clinical research.