Rare Disease Clinical Trials: How to Prepare for When the Clinical Trial Ends

Part 2 of a 3-part series. Learn about clinical trials, what it means to participate, and what happens when the clinical trial is completed. Moderated by Marsha Lanes of NORD (National Organization for Rare Disorders).

Access the webinar here.

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Moderator
Marsha Lanes,
Genetic Counselor/
Medical Editor,
NORD

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Panelist
Dr. Tracy Dixon-Salazar,
Executive Director,
Lennox-Gastaut
Syndrome Foundation

Panelist
Richie Kahn, MPH
Senior Director,
Patient Engagement,
Medable Inc.

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Panelist
Dana Holinka,
Operating Board Member,
TSC Alliance

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